Understanding the narratives of people who live with medically unexplained illness
Understanding the narratives of people who live with medically unexplained illness
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DOI：
10.1016/j.pec.2004.02.010
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发表时间：
2005-02-01
影响因子：
3.5
通讯作者：
Duffey, P
中科院分区：
文献类型：
--
作者：
Nettleton, S;Watt, I;Duffey, P
本文报告了一项质性研究，探讨了患者的叙述。患有医学上无法解释的症状（MUS）并且没有获得诊断标签的人。访谈对象为在英国神经内科门诊就诊的IS参与者（5名男性和13名女性）。确定的患者叙述的三个特征是：他们的疾病叙述的“混乱”结构；担心症状可能“全在心里”；以及他们作为“医疗孤儿”的地位。所有的病人都承认诊断是困难的，并接受医学解释总是可能的。然而。他们更。关切地确保某种形式的持续医疗和社会支助。了解患者对未确诊疾病的叙述的结构和内容可能有助于开发更有效和敏感的以患者为中心的护理。2004爱思唯尔爱尔兰有限公司版权所有。
This paper reports on a qualitative study, which explores the narratives of patients. who live with medically unexplained Symptoms (MUS) and who have not secured a diagnostic label. Interviews were undertaken with IS participants (5 men and 13 women) who attended a neurology outpatients department in the UK. Three features of the patients' narratives identified are: the 'chaotic' structure of their illness narratives; concern that symptoms may be 'all in the mind'; and their status as 'medical orphans'. All the patients acknowledge that diagnosis is difficult and accept that a medical explanation will invariably be possible. However. they are more. concerned to secure some form of ongoing medical and social support. An understanding of both the structure as well as the content of patients' narratives of undiagnosed illness may contribute to the development of more effective and sensitive patient centred care. (C) 2004 Elsevier Ireland Ltd. All rights reserved.