Creating patient and family education web sites: design and content of the home parenteral nutrition family caregivers web site.
Creating patient and family education web sites: design and content of the home parenteral nutrition family caregivers web site.
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DOI:
10.1097/ncn.0b013e31822bef7a
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发表时间:
2011-11
期刊:
影响因子:
--
通讯作者:
Smith CE
中科院分区:
文献类型:
--
作者:
Fitzgerald SA;Macan Yadrich D;Werkowitch M;Piamjariyakul U;Smith CE
When managing chronic illnesses, caregivers repeatedly seek online information about providing complex, long-term care but often neglect to find information about how to care for themselves. Poor health among caregivers is not only detrimental to their own well-being but may also result in harm to those for whom they care. For this reason, caregivers need access to information and activities about caring for themselves in addition to the information about managing home care they were already likely to seek. The HPN Family Caregivers Website was developed to guide caregivers through the process of caring for themselves by establishing a caregiving routine, self-monitoring their mental and physical health, practicing good sleep hygiene, etc., while also managing the complexities of home care. While website information, activities and algorithms for managing chronic illnesses need to be specific to each population, the content guiding caregivers to care for their own health is universal.