Defining cancer survivors, their needs, and perspectives on survivorship health care in the USA

Defining cancer survivors, their needs, and perspectives on survivorship health care in the USA
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DOI:
10.1016/s1470-2045(16)30573-3
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发表时间:
2017-01-01
期刊:
影响因子:
51.1
通讯作者:
Earp, Jo Anne
Earp, Jo Anne
中科院分区:
医学1区
文献类型:
--
作者:
Mayer, Deborah K.;Nasso, Shelly Fuld;Earp, Jo Anne

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癌症患者比以往任何时候都多,目前约占美国人口的5%。自20世纪80年代中期以来,癌症幸存者这一专业一直在发展壮大,但癌症患者和照顾他们的人对“幸存者”一词存在争议。无论使用什么术语,许多持续的身体、心理和社会需求都会影响癌症患者和癌症幸存者的生活质量。幸存者更愿意让他们的肿瘤医生解决这些需求,但也希望他们的初级保健提供者发挥作用。然而,幸存者也认为护理提供者之间存在沟通和协调障碍。提供癌症治疗的现有方法正在变得不可持续,并且无法充分配置为美国不断增长的人口提供高质量的癌症治疗,特别是在面临预计到2020年医疗保健短缺的情况下。在本系列论文中,我们定义了术语癌症幸存者,讨论了幸存者的持续需求和对护理的偏好,并考虑了在美国提供协调的癌症护理的含义。
More people are living after a diagnosis of cancer than ever before and now account for around 5% of the US population. The specialty of cancer survivorship has been developing and growing since the mid-1980s, but the term survivor is open to debate by people living with cancer and those caring for them. Regardless of the term used, many ongoing physical, psychological, and social needs affect quality of life for people who are living with cancer and those who have survived the disease. Survivors prefer to have these needs addressed by their oncologist but also want their primary care provider to have a role. However, survivors also believe there are communication and coordination barriers between care providers. The existing method for delivering cancer care is becoming unsustainable and is not adequately configured to deliver high-quality cancer care to this growing population in the USA, especially when confronted with projected health-care shortages by 2020. In this Series paper, we define the term cancer survivor, discuss survivors' ongoing needs and preferences for care over time, and consider the implications for delivering coordinated cancer care in the USA.