A critical reflection on the development of the Participatory Autism Research Collective (PARC)
A critical reflection on the development of the Participatory Autism Research Collective (PARC)
复制标题
对参与式自闭症研究团体（PARC）发展的批判性反思
DOI：
10.1108/tldr-09-2018-0029
复制
发表时间：
2018
影响因子：
0.6
通讯作者：
N. Martin
中科院分区：
文献类型：
--
作者：
D. Milton;Susy Ridout;M. Kourti;Gillian Loomes;N. Martin
目的
参与式自闭症研究集体（PARC）最初成立的目的是将自闭症患者，包括学者和活动家（但不限于），与从事自闭症患者工作的早期职业研究人员和从业者聚集在一起，目的是建立一个社区，让那些希望看到自闭症患者更多地参与自闭症研究的人可以分享知识和专业知识。本文旨在探讨这一问题。
设计/方法论/途径
本文探讨了 PARC 网络的发展，反思了其在当前高等教育实践和结构中的活动和精神。
研究结果
为了支持自闭症患者尝试在可能并不总是体贴或包容的学术体系中建立自己的地位，PARC 的存在创造了一种结构，使自闭症患者可以影响社会变革。 PARC 作为一个支持网络，加强了自闭症学者在学术界的影响力。它还提供了一个结构，通过该结构，自闭症患者能够展示有用的实践，从而更广泛地参与其中。
原创性/价值
PARC 网络是英国第一个由自闭症患者主导、产生持续影响的此类企业。 PARC 通过支持新兴自闭症学者以及促进道德和参与性研究方法和实践，正在成长为自闭症研究领域的重要组成部分。
Purpose
The Participatory Autism Research Collective (PARC) was initially set up with the purpose of bringing autistic people, including scholars and activists (but not exclusively), together with early career researchers and practitioners who work with autistic people, with the aim being to build a community where those who wished to see more significant involvement of autistic people in autism research could share knowledge and expertise. This paper aims to discuss this issue.
Design/methodology/approach
This paper explores the development of the PARC network, reflecting upon its activities and ethos within current higher education practices and structures.
Findings
In supporting autistic individuals in their attempts to establish themselves within academic systems that may not always be considerate or accommodating, the existence of PARC creates a structure with which autistic people can influence social change. PARC serves as a network of support, strengthening the presence of autistic scholars in academia. It also provides a structure through which autistic people are able to demonstrate helpful practices with which to engage more broadly.
Originality/value
The PARC network is the first autistic-led venture of its kind in the UK to have a sustained impact. PARC is growing to become an important element in the field of autism studies both by supporting emerging autistic academics and by promoting ethical and participatory research methods and practices.