Pediatric death: Managing the aftermath in the emergency department

Pediatric death: Managing the aftermath in the emergency department
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DOI:
10.1016/s0736-4679(97)00119-4
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发表时间:
1997-01-01
影响因子:
1.5
通讯作者:
Maruyama, Nancy
Maruyama, Nancy
中科院分区:
医学4区
文献类型:
--
作者:
Ahrens, William;Hart, Raymond;Maruyama, Nancy

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在儿童猝死后,在急诊科管理家庭会议是困难的,如果处理不当,可能会对患者家属造成伤害。我们调查了在急诊科死亡的儿童的父母,以获取有助于急诊医生告诉父母他们的孩子已经死亡的信息。婴儿猝死综合症联盟伊利诺斯州分会向60名家长分发了一份24个问题的调查。如果父母表示他们的孩子在到达时被宣布死亡或在急诊室死亡,则包括结果。如果受害者超过16岁,患有绝症,或在住院后死亡,则结果被排除在外。共有37名家长完成了调查。76%的人认为主治医生有责任通知家人孩子已经死亡。抱着死去的孩子对88%有帮助。76%的人认为被问及器官捐赠问题不会令人反感。对于大多数父母来说,归还孩子的衣服是很重要的。整整92%的受访者会喜欢孩子的实物纪念品,比如孩子的手或头发的打印或模具。大多数家长认为,后续电话会有帮助,尽管只有少数人接到这样的电话。孩子在急诊室死亡的父母为急诊医生提供了一些关于通知父母他们孩子死亡的具体建议。虽然大多数儿童死于婴儿猝死综合征,但结果可能适用于其他儿科死亡。
Managing the family conference in the emergency department after the sudden death of a child is difficult and, when mishandled, can be deleterious to the patient's family. We surveyed parents of children who died in an emergency department setting in an effort to elicit information that will help emergency physicians tell parents that their child has died. A 24-question survey was distributed to 60 parents identified by the Illinois chapter of the Sudden Infant Death Syndrome Alliance. Results were included if the parents indicated that their child was pronounced dead on arrival or died in an emergency department. If the victim was over 16 years of age, had a terminal illness, or died after hospitalization, results were excluded. Thirty-seven parents completed the survey. Seventy-six percent felt that it was the attending physician's responsibility to inform the family that the child had died. Holding the dead child was helpful for 88%. Seventy-six percent felt that being asked about organ donation would not be offensive. For most parents, having the child's clothes returned was important. Fully 92% of the respondents would have liked a physical memento of the child, such as a print or mold of the child's hand or a lock of hair. Most parents felt that a follow-up telephone call would be helpful, although only a small minority received such a call. Parents whose child died in an emergency department provided some concrete suggestions for emergency physicians regarding informing parents that their child died. Although the majority of children died of sudden infant death syndrome, the results may be applicable to other pediatric deaths.