Comfort Needs of Cancer Family Caregivers in Outpatient Palliative Care.
Comfort Needs of Cancer Family Caregivers in Outpatient Palliative Care.
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癌症家庭照顾者在门诊姑息治疗中的舒适需求。
DOI：
10.1097/njh.0000000000000744
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发表时间：
2021-06-01
期刊：
影响因子：
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通讯作者：
Oliver DP
中科院分区：
文献类型：
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作者：
Washington KT;Benson JJ;Chakurian DE;Popejoy LL;Demiris G;Rolbiecki AJ;Oliver DP
越来越多的癌症和其他慢性病患者的症状主要在社区而不是住院治疗，这推动了门诊姑息治疗的快速扩张。护士和其他姑息治疗专业人员支持重病患者及其家属，但很少有研究专门研究癌症家庭照顾者接受门诊姑息治疗团队服务的需求。为了解决知识库中的这一差距，研究人员以舒适理论为理论指导，对39名家庭护理人员进行的定性访谈进行了反思性主题分析。七个主题描述照顾者的舒适需求，包括需要理解，需要自我效能，需要获得意义，需要非正式的支持，需要正式的支持，需要资源，需要自我照顾。研究结果对姑息护理有明确的意义，因为它们直接解决了癌症家庭护理人员在全国优质姑息护理临床实践指南共识项目所划定的八个护理领域中的五个领域的需求。建议进行全面的整体护理评估，以确定家庭照顾者的需求，并计划提供以证据为基础的干预措施，以减轻负担，提高生活质量。
Rapid expansion of outpatient palliative care has been fueled by the growing number of people living with cancer and other chronic illnesses whose symptoms are largely managed in the community rather than inpatient settings. Nurses and other palliative care professionals support seriously ill patients and their families, yet little research has specifically examined the needs of cancer family caregivers receiving services from outpatient palliative care teams. To address this gap in the knowledge base, researchers conducted a reflective thematic analysis of qualitative interviews conducted with 39 family caregivers, using Comfort Theory as a theoretical guide. Seven themes describing caregivers’ comfort needs were identified including the need to understand, need for self-efficacy, need to derive meaning, need for informal support, need for formal support, need for resources, and need for self-care. Findings have clear implications for palliative nursing, as they directly address cancer family caregivers’ needs in five of the eight domains of care delineated by the National Consensus Project for Quality Palliative Care’s Clinical Practice Guidelines. Comprehensive, holistic nursing assessment is suggested to identify family caregivers’ needs and plan for delivery of evidence-based interventions shown to decrease burden and improve quality of life.