Piloting an Oral History Approach to Investigate Cancer Perspectives Among Residents of Appalachian Kentucky.
Piloting an Oral History Approach to Investigate Cancer Perspectives Among Residents of Appalachian Kentucky.
复制标题
DOI：
10.13023/jah.0501.07
复制
发表时间：
2023
影响因子：
--
通讯作者：
Vanderford, Nathan L
中科院分区：
文献类型：
--
作者：
Martin, Courtney;Hudson, Lauren;Vanderford, Nathan L
肯塔基州的癌症发病率和死亡率在美国排名第一。与非阿巴拉契亚县相比，该州沿着肯塔基州东部边界的阿巴拉契亚地区的癌症发病率高得不成比例。目的：这项试点研究调查口述历史访谈是否可以用来了解阿巴拉契亚肯塔基州居民对癌症的看法。2020年，招募了来自阿巴拉契亚肯塔基州和/或与阿巴拉契亚有密切联系的参与者（n = 5）参加这项试点研究。参与者包括在癌症相关领域工作的个人，肿瘤学专业人员和具有个人癌症经验的人。使用口述历史的方法，受试者被问及阿巴拉契亚地区内导致癌症高发病率的挑战。访谈采用定性内容分析法进行分析，并将数据浓缩为主题、次主题和次主题。关系内容分析，然后用来说明之间的关系所面临的问题，在阿巴拉契亚和他们的贡献因素，与潜在的解决方案，这些问题。通过对口述历史访谈的分析，出现了六个关键主题：（1）在阿巴拉契亚面临的问题;（2）促成因素;（3）潜在的解决方案;（4）阿巴拉契亚的性格;（5）对癌症的经验和想法;（6）定义成功与没有改变的未来（干预）。在这些主题中又确定了25个次主题。总的来说，这些主题和次主题指出了具体干预的潜在领域，以转移阿巴拉契亚的癌症负担。这项试点研究表明，使用口述历史访谈来阐明阿巴拉契亚州的阿肯色州人对癌症的看法有潜在的好处。通过这种方法获得的细微差别的见解，确定了一套文化上适当的干预措施，可以解决该地区不成比例的癌症负担。未来使用口述历史方法的研究可能旨在揭示癌症如何影响个人，家庭和社区的其他具体方面。
Kentucky ranks first in the U.S. in overall cancer incidence and mortality rates. Areas of the state that fall within the Appalachian Region, along Kentucky’s eastern border, experience disproportionately high rates of cancer compared to non-Appalachian counties. Purpose: This pilot study investigates whether oral history interviews can be used to understand perspectives on cancer among residents of Appalachian Kentucky. In 2020, participants (n = 5) who identified as being from and/or having strong connections to Appalachian Kentucky were recruited to participate in this pilot study. Participants included individuals working in cancer-related fields, oncology professionals, and those with personal cancer experience. Using an oral history approach, subjects were asked about challenges within Appalachia that contribute to high rates of cancer regionally. Interviews were analyzed using qualitative content analysis, and data were condensed into themes, subthemes, and subtopics. Relational content analysis was then used to illustrate relationships between the problems being faced in Appalachia and their contributing factors, with potential solutions to those problems. Six key themes emerged from analysis of the oral history interviews: (1) problems being faced in Appalachia; (2) contributing factors; (3) potential solutions; (4) Appalachian disposition; (5) experiences with and thoughts on cancer; and (6) defining success v. the future without changes (intervention). A further 25 subthemes were identified from within these themes. Taken together, these themes and subthemes point to potential areas for specific intervention to shift Appalachia’s cancer burden. This pilot study demonstrates potential benefit in using oral history interviews to elucidate Appalachian Kentuckians’ perspectives on cancer. From the nuanced insights gained through this method, a set of culturally appropriate interventions were identified that could address the disproportionate cancer burden in the region. Future studies using an oral history approach could aim to reveal other specific aspects of how cancer impacts individuals, families, and communities.