The psychosocial impact of hidradenitis suppurativa

The psychosocial impact of hidradenitis suppurativa
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DOI:
10.1016/j.jaad.2015.07.054
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发表时间:
2015-11-01
影响因子:
13.8
通讯作者:
Papp, Kim
Papp, Kim
中科院分区:
医学1区
文献类型:
--
作者:
Gooderham, Melinda;Papp, Kim

文献摘要

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越来越多地,生活质量数据与其他措施一起被用于评估多种疾病状态治疗的成功程度。化脓性汗腺炎(HS)也是如此,这是一种以多种症状为特征的炎症,包括可在身体多个部位出现的脓肿,通常在敏感部位,可能是疼痛的,可能破裂,并可能产生恶臭的脓液。收集关于HS个人影响的基线数据是确定各种干预措施是否能提高HS患者生活质量的必要第一步。虽然没有特定的工具可以充分了解HS所促进的社会心理障碍,但用于测量HS患者生活质量的无数工具一致表明,该疾病对患者的身体、社会和情感健康有重大的不利影响。
Increasingly, quality of life data are being captured along with other measures to evaluate success in the treatment of numerous disease states. This is no less true in hidradenitis suppurativa (HS), an inflammatory condition that features multiple symptoms, including abscesses that can develop in multiple sites on the body, often in sensitive areas, that can be painful, can rupture, and can produce malodorous pus. The collection of baseline data with respect to the personal impact of HS is a necessary first step to determine if various interventions enhance the quality of life for patients with HS. While no particular tool provides sufficient insight about the psychosocial impairment that HS promotes, myriad instruments that have been used to measure the quality of life of HS patients have consistently shown that the disease has a substantial adverse impact on the physical, social, and emotional well-being of patients.