Dementia diagnosis disclosure - A study of patient and caregiver perspectives
Dementia diagnosis disclosure - A study of patient and caregiver perspectives
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DOI：
10.1097/wad.0b013e318065c481
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发表时间：
2007-04-01
影响因子：
2.1
通讯作者：
Bassett, Raeivyn
中科院分区：
文献类型：
--
作者：
Byszewski, Anna M.;Molnar, Frank J.;Bassett, Raeivyn
本文报道了一项描述性、探索性、定性研究的结果，该研究从患者和护理人员的角度对痴呆诊断的披露进行了研究。在3个时间点收集数据：（1）披露会议，（2）患者和护理人员访谈，（3）焦点小组访谈。30名患者-护理人员参加了在加拿大渥太华渥太华医院老年日间医院的公开会议。诊断结果披露后一周内，27名（90%）患者和29名（97%）护理人员在家中接受了采访，披露会议后1个月内，12名护理人员参加了3次焦点小组采访。大多数患者和护理人员表示，他们更愿意完全披露诊断结果。患者对医生提供的诊断和他们的护理人员出席披露会议表示满意，但是，希望了解更多关于他们病情的信息。护理人员提供了关于患者反应的进一步见解，并建议需要在面对困难的诊断时强调希望，使用渐进式披露，让患者（和护理人员）做好准备，并提供有关疾病及其进展的详细信息。
This paper reports the findings of a descriptive, exploratory, qualitative study of patient and caregiver perspectives of the disclosure of a dementia diagnosis. Data were collected at 3 points in time: (1) the disclosure meeting, (2) patient and caregiver interviews, and (3) focus group interviews. Thirty patient-caregiver dyads participated in the disclosure meetings at the Geriatric Day Hospital at the Ottawa Hospital, Ottawa, Canada. Within a week of the disclosure of diagnosis, 27 (90%) patients and 29 (97%) caregivers were interviewed in their homes, and 12 caregivers participated in 3 focus group interviews within 1 month after the disclosure meeting. Most patients and caregivers said they preferred full disclosure of the diagnosis. Patients expressed satisfaction with the physician providing the diagnosis and with their caregivers being present at the disclosure meeting, however, wanted more information about their condition. Caregivers provided further insight regarding the patient response, and suggested the need to emphasize hope in the face of a difficult diagnosis, the use of progressive disclosure to allow the person (and caregivers) to prepare, and the provision of detail about the disease and its progression.