Promotion of the Transition of Adult Patients with Childhood-Onset Chronic Diseases among Pediatricians in Japan.
Promotion of the Transition of Adult Patients with Childhood-Onset Chronic Diseases among Pediatricians in Japan.
复制标题
促进日本儿科医生童年发作慢性疾病的过渡。
DOI：
10.3389/fped.2016.00111
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发表时间：
2016
影响因子：
2.6
通讯作者：
Kaneko K
中科院分区：
文献类型：
--
作者：
Ishizaki Y;Higashino H;Kaneko K
儿童期慢性病(APCCD)成人患者从儿科向成人保健系统的过渡最近受到了全世界的关注。然而，日本落后于欧洲国家和北美，因为这一卫生保健过渡的概念在10年前才被引入 。在日本，在引入这一概念之前，APCCD被称为“遗留患者”，他们经常被认为是儿科实践中的负担。20世纪90年代末，由儿科肾病医生、发育和行为儿科医生、儿科护士和特殊教育教师组成的小组研究成人慢性肾病患者的生活质量，开始讨论APCCD的身体和心理社会问题。2006年，一群儿科医生在一家日本期刊上首次引入了“过渡”一词。到2010年，一群青少年护士开始了一项专门的培训计划，目的是在过渡时期为病人提供支持。2013年，日本厚生劳动省召集了一个研究委员会，重点关注与对亚太儿童疾病的社会、教育和医疗支持有关的问题，日本儿科学会成立了亚太儿童疾病保健过渡委员会，并总结了他们的声明。此外，2013年，东京都儿童医疗中心启动了由专门护士管理的APCCD门诊服务。卫生保健过渡的概念在过去10年 中迅速传播。这篇文章的目的是描述这一卫生保健过渡的概念在日本是如何推进的，从而使APCCD现在经历了从儿童到成人的积极卫生保健过渡。
The transition of adult patients with childhood-onset chronic diseases (APCCD) from pediatric to adult health-care systems has recently received worldwide attention. However, Japan is lagging behind European countries and North America as this concept of health-care transition was introduced only 10 years ago. In Japan, before the introduction of this concept, APCCD were referred to as “carryover patients,” who were often considered a burden in pediatric practice. In the late 1990s, groups composed of pediatric nephrologists, developmental and behavioral pediatricians, pediatric nurses, and special education teachers researching the quality of life of adult patients with chronic kidney disease began to discuss the physical and psychosocial problems of APCCD. In 2006, a group of pediatricians first introduced the term “transition” in a Japanese journal. By 2010, a group of adolescent nurses had begun a specialized training program aimed at supporting patients during the transitional period. In 2013, the Ministry of Health, Labour and Welfare in Japan convened a research committee, focusing on issues related to social, educational, and medical support for APCCD, and the Japan Pediatric Society established a committee for the health-care transition of APCCD and summarized their statements. Moreover, in 2013, the Tokyo Metropolitan Children’s Medical Center initiated ambulatory services for APCCD managed by specialized nurses. The concept of health-care transition has rapidly spread over these past 10 years. The purpose of this article is to describe how this concept of health-care transition has advanced in Japan, such that APCCD now experience a positive pediatric to adult health-care transition.