Preferences regarding end-of-life cancer care and associations with good-death concepts: a population-based survey in Japan

Preferences regarding end-of-life cancer care and associations with good-death concepts: a population-based survey in Japan
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DOI:
10.1093/annonc/mdm199
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发表时间:
2007-09-01
期刊:
影响因子:
50.5
通讯作者:
Uchitomi, Y.
Uchitomi, Y.
中科院分区:
医学1区
文献类型:
--
作者:
Sanjo, M.;Miyashita, M.;Uchitomi, Y.

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背景资料:本研究的目的是澄清临终癌症护理的偏好和协会与好death concepts.Methods:一般人群进行了抽样,采用分层随机抽样方法(N = 2548;响应率= 51%)和丧亲家庭从12个认证的姑息治疗单位(“PCU丧亲家庭”)进行了调查(N = 513;响应率= 70%)。受访者报告了他们的临终关怀的喜好和好死conceptions.Results:关于临终关怀的地方,大约50%的一般人口首选“家”,而73%的PCU丧亲家庭首选“PCU”。“保持希望和快乐”和“死在最喜欢的地方”的概念与“家”的偏好有关。关于预后披露,大约50%的参与者更喜欢与医生进行某种程度的谈判。“控制未来”的概念与这种偏好有关。关于严重难治性身体痛苦的治疗,75%的一般人群和85%的PCU丧失家庭首选姑息性镇静治疗。“身体和心理舒适”和“死亡的意识不到”的概念与此preference.Conclusions:临终关怀的偏好与良好的死亡概念。卫生保健工作者讨论病人的安乐死概念,以支持随后的治疗决定,这将是有益的。
Background: The aims of this study were to clarify end-of-life cancer care preferences and associations with good-death concepts.Methods: The general population was sampled using a stratified random sampling method (N = 2548; response rate = 51%) and bereaved families from 12 certified palliative care units ('PCU-bereaved families') were surveyed (N = 513; response rate = 70%). The respondents reported their end-of-life care preferences and good-death concepts.Results: Regarding place of end-of-life care, approximately 50% of the general population preferred 'Home', while 73% of PCU-bereaved families preferred 'PCU'. The concepts of 'Maintaining hope and pleasure' and 'Dying in a favorite place' were associated with the preference for 'Home'. Regarding prognostic disclosure, approximately 50% of the participants preferred some level of negotiation with the physician. The concept of 'Control over the future' was associated with this preference. Regarding treatment of severe refractory physical distress, 75% of the general population and 85% of the PCU-bereaved families preferred palliative sedation therapy. The concepts of 'Physical and psychological comfort' and 'Unawareness of death' were associated with this preference.Conclusions: End-of-life care preferences were associated with good-death concepts. It would be useful for health-care workers to discuss patients' good-death concepts to support subsequent treatment decisions.