Advanced care planning in children with life-limiting conditions - the Wishes Document
Advanced care planning in children with life-limiting conditions - the Wishes Document
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DOI：
10.1136/adc.2009.160051
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发表时间：
2010-02-01
影响因子：
5.2
通讯作者：
Finlay, F.
中科院分区：
文献类型：
--
作者：
Fraser, J.;Harris, N.;Finlay, F.
2009年4月，儿童姑息治疗协会批准了《愿望文件》，作为生命受到限制的儿童临终讨论的模板（《儿童和家庭愿望文件》）。限制生命的条件被定义为“目前没有治愈方法，而且这种条件可能导致儿童过早死亡”。[1]这描述了许多儿科医生所熟悉的儿童，这些儿童患有严重的脑瘫、神经退行性疾病、严重的先天性心脏病以及代谢和染色体疾病，仅举几例。医疗保健的进步，沿着越来越高的社会期望，导致患有这些疾病的儿童寿命更长。这篇评论讨论了敏感的生命末期规划的重要性，这样的病人，并介绍了儿童和家庭愿望文件的历史和格式。
In April 2009, the Association for Children’s Palliative Care (ACT) endorsed the Wishes Document as a template for end-of-life discussions in children with life-limiting conditions (Child & Family Wishes Document). A life-limiting condition has been defined as “One for which there is currently no cure available and the likelihood is that the condition will lead to the child dying prematurely”. 1 This describes many of the children that are familiar to paediatricians–those with severe cerebral palsy, neurodegenerative conditions, severe congenital heart disease, and metabolic and chromosomal disorders, to name but a few. Advances in medical care, along with increasing societal expectations, have resulted in children with these conditions living much longer. This review discusses the importance of sensitive end-of-life planning for such patients and describes the history and format of the Child & Family Wishes Document.