Supporting home hospice family caregivers: Insights from different perspectives
Supporting home hospice family caregivers: Insights from different perspectives
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DOI：
10.1017/s1478951517000219
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发表时间：
2018-04-01
影响因子：
2.2
通讯作者：
Clayton, Margaret F.
中科院分区：
文献类型：
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作者：
Ellington, Lee;Cloyes, Kristin G.;Clayton, Margaret F.
目的：我们的目的是描述和比较国家安宁疗护思想领袖、安宁疗护护士和前家庭照护者对促进或威胁家庭照护者支持感知的因素的观点。方法：全国认可的安宁疗护思想领袖（n = 11）、安宁疗护护士（n = 13）、前家庭照护者（n = 14）参与调查。访谈和焦点小组都有录音和文字记录。数据采用归纳编码，按主题分层分组。对紧急类别进行描述性总结，并在组间进行比较。结果：三个参与者群体（95%，366/384代码）的四类相关回答：(1)熟练沟通的要点（30.6%），(2)建立真实关系的重要性（28%），(3)专家教学的价值（22.4%）和(4)团队合作的关键作用（18.3%）。思想领袖强调沟通（44.6%），护理人员强调专家教学（51%），护士强调团队合作（35.8%）。护士讨论团队合作的频率显著高于护理人员（z = 2.2786），思想领袖讨论沟通的频率显著高于护理人员（z = 2.8551），护理人员讨论专家教学的频率显著高于思想领袖（z = 2.1693）和护士（z = 2.4718， p值均< 0.05）。结果的意义：我们的研究结果表明，家庭照顾者、临终关怀护士和思想领袖对照顾者支持的优先级存在差异。临终关怀团队可以从进一步的教育和培训中受益，以帮助跨越以家庭为中心的临终关怀作为临床理想的分裂，成为一个临终关怀团队成员可以完全支持和授权家庭照顾者作为临终关怀团队成员的地方。
Objective:Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support.Method:Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups.Results:Four categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders (z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05).Significance of Results:Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.