Selfhood in younger onset dementia: Transitions and testimonies
Selfhood in younger onset dementia: Transitions and testimonies
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DOI：
10.1080/13607860802534609
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发表时间：
2009-01-01
影响因子：
3.4
通讯作者：
Keady, John
中科院分区：
文献类型：
--
作者：
Harris, Phyllis Braudy;Keady, John
在研究、政策和实践方面，年轻的痴呆症患者及其照护者是被忽视的人群。在这项研究中，数据收集来自美国和英国，以探索自我和身份的意义和构建。美国的数据收集包括对23名被诊断为早发性痴呆症的人的深度访谈，而英国的数据收集包括对年轻痴呆症患者的年轻护理人员的15次面对面访谈；所有的护理人员都在或曾经照顾过一个通过DSM-IV-R标准诊断出患有痴呆症的年轻人。对数据进行扎实的理论分析，产生了五个主题来解释访谈数据，它们是：(1)作为工人的身份；（二）被遗弃人的身份；(3)性别认同；（四）家庭身份；(5)作为从事生活的个体的身份。需要进一步的研究来进一步开发这些身份配置文件的属性和应用。
Younger people with dementia and their carers are an overlooked population for research, policy and practice attention. In this study, data were collected from both the United States and the UK in order to explore the meaning and construction of selfhood and identity. The US data collection included in-depth interviews with 23 people diagnosed with younger-onset dementia, while the UK data collection comprised 15 face-to-face interviews with younger carers of younger people with dementia; all carers were/had been caring for a younger person with dementia diagnosed through the DSM-IV-R criteria. A grounded theory analysis of the data resulted in the emergence of five themes to explain the interview data, these were: (1) identity as a worker; (2) identity of abandoned individual; (3) sexual identity; (4) family identity; and (5) identity as an individual engaged in living. Additional research is necessary to further develop the attributes and application of these identity profiles.