Illness perceptions in cancer survivors: what is the role of information provision?
Illness perceptions in cancer survivors: what is the role of information provision?
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DOI：
10.1002/pon.3042
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发表时间：
2013-03-01
期刊：
影响因子：
3.6
通讯作者：
van de Poll-Franse, Lonneke V.
中科院分区：
文献类型：
--
作者：
Husson, Olga;Thong, Melissa S. Y.;van de Poll-Franse, Lonneke V.
背景资料：本研究的目的是深入了解癌症survivor.Methods之间的信息提供和疾病的看法之间的关系：所有个人诊断为淋巴瘤，多发性骨髓瘤，子宫内膜癌或结直肠癌之间的1998年和2008年，登记在埃因霍温癌症登记处，有资格参加。总共有4446名幸存者接受了包括EORTC-QLQ-INFO 25和简明疾病感知问卷在内的问卷调查; 69%的人做出了回答结果：淋巴瘤和多发性骨髓瘤患者对他们收到的信息最满意，他们认为自己得到了更多关于治疗和其他服务的信息，（术后）与结直肠癌和子宫内膜癌幸存者相比（p < 0.05）。多发性骨髓瘤患者报告的得分最高（将他们的疾病概念化为非常严重）。感知到收到更多疾病特异性信息与更多的个人和治疗控制以及对疾病的更好理解相关，而感知到收到更多关于其他服务的信息与疾病对患者生活的更多负面后果相关，自感病程长、治疗控制差、归因症状多、对疾病了解少、情绪反应强（P < 0.05）。结论：根据患者的需求提供信息，改善患者的疾病感知，有助于患者对疾病有更清晰的认识，从而提高患者的生活质量。版权所有（C）2012约翰威利父子有限公司
Background: The aim of this study was to provide insight into the relationship between information provision and illness perceptions among cancer survivors.Methods: All individuals diagnosed with lymphoma, multiple myeloma, endometrial or colorectal cancer between 1998 and 2008, as registered in the Eindhoven Cancer Registry, were eligible for participation. In total, 4446 survivors received a questionnaire including the EORTC-QLQ-INFO25 and the Brief Illness Perception Questionnaire; 69% responded (n = 3080).Results: Lymphoma and multiple myeloma patients were most satisfied with the information they received, and they perceived to having received more information about their treatment and other services (after care) compared with colorectal and endometrial cancer survivors (p < 0.05). Multiple myeloma patients reported the highest scores (conceptualized their illness as very serious) on the illness perception scales.The perceived receipt of more disease-specific information was associated with more personal and treatment control and a better understanding of the illness, whereas the perceived receipt of more information about other services was associated with more negative consequences of the illness on the patients' life, longer perceived duration of illness, less treatment control, more symptoms attributable to the illness, less understanding of, and stronger emotional reaction to the illness (p < 0.05). Satisfaction with the received information was associated with better illness perception on all subscales, except for personal control (p < 0.05).Conclusion: Improving the patients' illness perceptions by tailoring the information provision to the needs of patients may help patients to get a more coherent understanding of their illness and will possibly lead to a better health-related quality of life. Copyright (C) 2012 John Wiley & Sons, Ltd.