Families of children with Down syndrome: responding to "a change in plans" with resilience.
Families of children with Down syndrome: responding to "a change in plans" with resilience.
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DOI：
10.1016/j.pedn.2006.07.004
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发表时间：
2007-04-01
期刊：
影响因子：
--
通讯作者：
Van Riper, Marcia
中科院分区：
文献类型：
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作者：
Van Riper, Marcia
本研究以“家庭压力、调整和适应弹性模型”为指导，目的有两方面：(a)描述唐氏综合症儿童家庭中母亲对父母和家庭适应的看法；(b)研究唐氏综合症儿童家庭中家庭需求、家庭资源、家庭问题解决和应对与家庭适应之间的联系。76位母亲完成了邮寄的调查问卷。70%的母亲给她们家庭的整体功能评分为4或5分（满分为5分，1 =差；5 =好）。在她们的书面评论中，大多数母亲报告说她们的家庭过得很好或非常好。三个家庭变量（即家庭需求、家庭资源和家庭问题解决沟通）与家庭适应显著相关。这些结果支持了这样一种信念，即许多唐氏综合症儿童的家庭对“计划的改变”有弹性的反应。也就是说，面对抚养唐氏综合症儿童的持续挑战，他们能够忍受、生存，甚至茁壮成长。
The purpose of the present investigation, which was guided by the Resiliency Model of Family Stress, Adjustment, and Adaptation, was twofold: (a) to describe maternal perceptions of parental and family adaptation in families raising a child with Down syndrome, and (b) to examine linkages between family demands, family resources, family problem solving and coping, and family adaptation in families of children with Down syndrome. Seventy-six mothers completed mailed questionnaires. Seventy percent of the mothers rated their family's overall functioning as either a 4 or a 5 on a 5-point scale (1 = poor; 5 = excellent). In their written comments, most mothers reported that their family was doing well or very well. Three family variables (i.e., family demands, family resources, and family problem-solving communication) were significantly associated with family adaptation. These results provide support for the belief that many families of children with Down syndrome respond to "a change of plans" with resilience. That is, they are able to endure, survive, and even thrive in the face of ongoing challenges associated with raising a child with Down syndrome.