Effects of creating visual illness narratives on quality of life with asthma: a pilot intervention study.
Effects of creating visual illness narratives on quality of life with asthma: a pilot intervention study.
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创建视觉疾病叙述对哮喘患者生活质量的影响：一项试点干预研究。
DOI：
10.1016/j.jadohealth.2005.08.007
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发表时间：
2006
期刊：
影响因子：
--
通讯作者：
Woods,ElizabethR
中科院分区：
文献类型：
--
作者：
Rich,Michael;Lamola,Steven;Woods,ElizabethR
目的通过创建哮喘患者生活的视觉疾病叙述，确定通过视频进行自我检查是否与改善疾病特异性生活质量有关。方法采用儿童哮喘生活质量问卷（PAQLQ）对19例符合1992年美国国家心肺血液研究所（National Heart, Lung, and Blood Institute）标准的中重度哮喘儿童和青少年（8-19岁）进行两次（T1和T2）和一次（T3）的儿童哮喘生活质量问卷（PAQLQ），对其哮喘生活进行视频干预/预防评估（VIA）的视觉叙述。PAQLQ是一种先前经过验证的量表（范围1-7），从三个方面衡量哮喘特定的生活质量：活动限制、症状和情绪功能。总体和特定领域的PAQLQ得分比较使用一般线性模型重复测量分析。参与者关于VIA体验的退出访谈使用扎根理论进行分析。结果患者PAQLQ的平均评分在T1和T2之间没有变化，但从T1时的4.78分显著升高到T3时的5.30分（p = 0.045）。活动水平域评分由T1时的平均4.08分上升至T3时的平均5.08分（p≤0.001）。定性数据表明，VIA与大多数参与者增加的疾病意识和更自信的自我管理有关。结论本初步研究的结果表明，创建视觉疾病叙述与改善哮喘儿童和青少年的生活质量有关。需要更大数量和对照组的研究来评估VIA作为一种干预措施，并进一步量化其对健康相关生活质量的影响。
PURPOSETo determine whether self-examination through video, by creating visual illness narratives of living with asthma, is associated with improved disease-specific quality of life.METHODSNineteen children and adolescents (aged 8–19 years) with moderate or severe asthma by 1992 National Heart, Lung, and Blood Institute criteria were administered the Pediatric Asthma Quality of Life Questionnaire (PAQLQ) twice before (T1 and T2) and once immediately after (T3) they made Video Intervention/Prevention Assessment (VIA) visual narratives of their lives with asthma. The PAQLQ is a previously validated scale (range 1–7) that measures asthma-specific quality of life in three domains: activity limitation, symptoms, and emotional function. Overall and domain-specific PAQLQ scores were compared using general linear model repeated measures analysis. Participant exit interviews about the VIA experience were analyzed using grounded theory.RESULTSThe mean PAQLQ score did not change between T1 and T2, but significantly increased from 4.78 at T1 to 5.30 at T3 (p = .045). The activity level domain score increased from a mean of 4.08 at T1 to 5.08 at T3 (p ≤ .001). Qualitative data indicated that VIA was associated with increased disease-awareness and more confident self-management for most participants.CONCLUSIONSThe results of this pilot study suggest that creating visual illness narratives is associated with improved quality of life for children and adolescents with asthma. Research with larger numbers and a control group is needed to evaluate VIA as an intervention and to further quantify its impact on health-related quality of life.
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DOI：
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