Exploring Caregiver Interest in and Preferences for Interventions for Children With Risk of Asthma Exacerbation: Web-Based Survey.
Exploring Caregiver Interest in and Preferences for Interventions for Children With Risk of Asthma Exacerbation: Web-Based Survey.
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DOI：
10.2196/46341
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发表时间：
2023-08-02
影响因子：
2.2
通讯作者：
Shepperd, James A.
中科院分区：
文献类型：
--
作者：
Pogge, Gabrielle;Fedele, David A.;Waters, Erika A.;Maki, Julia;Hunleth, Jean M.;Prabhakaran, Sreekala;Bowen, Deborah J.;Shepperd, James A.
保持对哮喘症状的控制是美国哮喘治疗指南的基石。然而，年轻人中哮喘控制不佳和哮喘急性发作很常见，并与许多负面结果相关。需要采取干预措施来改善哮喘控制。为了使这些干预措施取得成功，有必要了解对不同程度加重风险的儿童的照顾者有吸引力的干预措施类型。本研究旨在评估哮喘急性发作高（与低）风险儿童的照顾者是否对潜在的干预计划和提供方法表现出不同程度的兴趣和偏好。我们与益普索签订合同，对居住在美国的哮喘儿童的照顾者进行基于网络的调查。护理人员（N=394）报告了他们对9种可能的干预方案和8种可能的干预实施方法的兴趣（1=完全没有; 3=很多）。照顾者还通过选择他们“最”感兴趣的3种干预方案和3种分娩方法来表明他们的偏好。最后，护理人员完成了2个开放式问题，询问哪些其他资源可能对管理他们的孩子的哮喘有用。如果儿童在过去3个月内有急性加重，我们将其归类为急性加重的高风险（n=116），否则将其归类为急性加重的低风险（n=278）。照顾者报告说，如果他们照顾的孩子有高风险，而不是低风险的恶化，在所有的干预计划和交付方法的兴趣水平较高。然而，不管孩子的风险状况如何，照顾者对提高孩子自我管理技能、帮助支付哮喘护理费用以及与学校合作管理哮喘的计划表示了最高的兴趣。护理人员对保持个人控制访问信息（网站，视频，印刷材料和智能手机应用程序）的交付方法表示了最高的兴趣。照顾者的偏好与他们的兴趣一致;被评为高度感兴趣的计划和交付方法也被选为他们“最”感兴趣的3个项目之一。虽然大多数看护者没有为开放式问题提供额外的建议，但一些看护者建议了我们没有包括的干预计划和交付方法（例如，关于避免触发因素和药物提醒的教育）。高风险和低风险儿童的照顾者之间相似的兴趣和偏好表明，在管理儿童哮喘方面需要广泛的支持。提供者可以帮助照顾者，引导他们获得使哮喘护理更负担得起的资源，并帮助他们的孩子进行哮喘自我管理。干预措施，以适应照顾者的关注，有个人控制哮喘信息的访问可能会更成功的干预措施，没有。
Maintaining control of asthma symptoms is the cornerstone of asthma treatment guidelines in the United States. However, suboptimal asthma control and asthma exacerbations among young people are common and are associated with many negative outcomes. Interventions to improve asthma control are needed. For such interventions to be successful, it is necessary to understand the types of interventions that are appealing to caregivers of children with different levels of risk of exacerbation. This study aimed to evaluate whether caregivers of children with high (vs low) risk of asthma exacerbation show different levels of interest in and preferences for potential intervention programs and delivery methods. We contracted with Ipsos to administer a web-based survey to caregivers of children with asthma who were residing in the United States. Caregivers (N=394) reported their interest (1=not at all; 3=a lot) in 9 possible intervention programs and 8 possible intervention delivery methods. Caregivers also indicated their preferences by selecting the 3 intervention programs and 3 delivery methods that “most” interested them. Finally, caregivers completed 2 open-ended questions asking what other resources might be useful for managing their children’s asthma. We classified children as having a high risk of exacerbation if they had an exacerbation in the past 3 months (n=116) and a low risk of exacerbation if otherwise (n=278). Caregivers reported higher levels of interest in all intervention programs and delivery methods if they cared for a child with a high risk rather than a low risk of exacerbation. However, regardless of the child’s risk status, caregivers expressed the highest levels of interest in programs to increase their child’s self-management skills, to help pay for asthma care, and to work with the school to manage asthma. Caregivers expressed the highest levels of interest in delivery methods that maintained personal control over accessing information (websites, videos, printed materials, and smartphone apps). Caregivers’ preferences were consistent with their interests; programs and delivery methods that were rated as high in interest were also selected as one of the 3 that “most” interested them. Although most caregivers did not provide additional suggestions for the open-ended questions, a few caregivers suggested intervention programs and delivery methods that we had not included (eg, education about avoiding triggers and medication reminders). Similar interests and preferences among caregivers of children with high and low risk of exacerbation suggest a broad need for support in managing childhood asthma. Providers could help caregivers by directing them toward resources that make asthma care more affordable and by helping their children with asthma self-management. Interventions that accommodate caregivers’ concerns about having personal control over access to asthma information are likely to be more successful than interventions that do not.
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影响因子：
14.2
作者：
McCoy, Karen;Shade, David M.;Anthonisen, N. R.
通讯作者：
Anthonisen, N. R.
影响因子：
3
作者：
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通讯作者：
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影响因子：
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作者：
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影响因子：
3.6
作者：
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通讯作者：
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影响因子：
14.2
作者：
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通讯作者：
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