Keeping secrets in the cloud: Mobile phones, data security and privacy within the context of pregnancy and childbirth in Tanzania

Keeping secrets in the cloud: Mobile phones, data security and privacy within the context of pregnancy and childbirth in Tanzania
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DOI:
10.1016/j.socscimed.2018.06.014
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发表时间:
2018-08-01
影响因子:
5.4
通讯作者:
Sellen, Daniel W.
Sellen, Daniel W.
中科院分区:
医学2区
文献类型:
--
作者:
Hackett, Kristy M.;Kazemi, Mina;Sellen, Daniel W.

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越来越多的证据表明,基于移动的电话的技术("mHealth")在帮助加强中低收入国家的社区卫生系统方面具有潜在价值,但mHealth方法在数据安全、个人隐私和保密方面也存在相当大的风险。我们研究了一线社区卫生工作者及其女性客户在移动健康干预背景下对数据安全和隐私的看法,以改善坦桑尼亚农村地区2013年10月至2014年7月妇女对孕产妇健康服务的接受。定性研究结果表明,使用新技术来获取怀孕和分娩期间的保健服务用户数据对个人隐私和保密性的看法既有积极的影响,也有消极的影响。女性对隐私的担忧与怀孕和预期分娩日期必须保密的信念密切相关,反映出她们担心怀孕会使女性容易受到嫉妒的邻居的巫术影响。妇女还对保健工作者的男性伴侣能够获得她们的私人信息表示关切。在制定移动保健干预措施时,建议从一开始就进行强有力的社区参与,以整合可能影响新技术的可接受性和实施的信念和性别动态。
Growing evidence points to the potential value of mobile phone-based technologies ('mHealth') to help strengthen community health systems in low- and middle-income countries, but mHealth approaches also carry considerable risks with respect to data security, individual privacy, and confidentiality. We examined the perspectives of frontline community health workers and their female clients regarding data security and privacy within the context of an mHealth intervention to improve women's uptake of maternal health services from October 2013 to July 2014 in rural Tanzania. Qualitative findings demonstrate that the use of new technologies to capture health service user data during pregnancy and childbirth has both positive and negative impacts on perceptions of personal privacy and confidentiality. Women's concerns regarding privacy aligned closely with a belief that pregnancies and expected delivery dates must be kept secret, reflecting fears that pregnancy renders women vulnerable to witchcraft by jealous neighbors. Women also shared concerns that health workers' male partners could access their private information. Strong community-based engagement is recommended from the outset when developing a mHealth intervention to integrate beliefs and gender dynamics that may influence acceptability and implementation of new technologies.