Carers' experiences of timely access to and use of dementia care services in eight European countries
Carers' experiences of timely access to and use of dementia care services in eight European countries
复制标题
DOI：
10.1017/s0144686x19001119
复制
发表时间：
2021-02-01
期刊：
影响因子：
2.5
通讯作者：
Woods, Bob
中科院分区：
文献类型：
--
作者：
Jelley, Hannah;Kerpershoek, Liselot;Woods, Bob
及时获得护理服务对于支持痴呆症患者及其家庭护理人员过上美好生活至关重要。从八个国家招募的痴呆症患者护理人员 (N = 390) 完成了半结构化访谈，了解他们在获得及时正式护理 (Actifcare) 研究中在 12 个月内获得或不使用正式护理服务的经历。使用内容分析总结参与者的反应，将其分类并计算频率。不到一半的参与者 (42.3%) 报告了服务的使用情况。在使用服务的人中，72.8%的人表示能够及时获得服务，在未使用服务的人中，67.2%的人对此情况感到满意。然而，相当少数人要么报告在错误的时间获得服务（27.2%），要么对不获得服务感到不满意或复杂的感觉（32.8%）。不使用服务的原因包括尚无必要使用、护理人员提供支持或拒绝。使用服务的原因包括痴呆症患者状况的变化、服务满足个人需求的能力、无法应对或出现获得服务的机会。服务使用的促进因素和障碍包括参与者是否有专业人士的支持、流程的速度、全科医生是否有帮助、参与者自己的积极态度以及收到的信息的质量。为了获得及时支持，需要简化使用正规护理服务的途径。
Timely access to care services is crucial to support people with dementia and their family carers to live well. Carers of people with dementia (N = 390), recruited from eight countries, completed semi-structured interviews about their experiences of either accessing or not using formal care services over a 12-month period in the Access to Timely Formal Care (Actifcare) study. Participant responses were summarised using content analysis, categorised into clusters and frequencies were calculated. Less than half of the participants (42.3%) reported service use. Of those using services, 72.8 per cent reported timely access and of those not using services 67.2 per cent were satisfied with this situation. However, substantial minorities either reported access at the wrong time (27.2%), or feeling dissatisfied or mixed feelings about not accessing services (32.8%). Reasons for not using services included use not necessary yet, the carer provided support or refusal. Reasons given for using services included changes in the condition of the person with dementia, the service's ability to meet individual needs, not coping or the opportunity to access services arose. Facilitators and barriers to service use included whether participants experienced supportive professionals, the speed of the process, whether the general practitioner was helpful, participant's own proactive attitude and the quality of information received. To achieve timely support, simplified pathways to use of formal care services are needed.