A community-engaged approach to the design of a population-based prospective cohort study to promote bladder health.
A community-engaged approach to the design of a population-based prospective cohort study to promote bladder health.
复制标题
采用社区参与的方法来设计基于人群的前瞻性队列研究，以促进膀胱健康。
DOI：
10.1002/nau.25098
复制
发表时间：
2023
影响因子：
2
通讯作者：
PreventionofLowerUrinaryTractSymptoms(PLUS)ResearchConsortium.
中科院分区：
文献类型：
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作者：
Klusaritz,Heather;Maki,Julia;Levin,Elise;Ayala,Amy;Nodora,Jesse;Coyne-Beasley,Tamera;Hebert-Beirne,Jeni;Lipman,TerriH;James,Aimee;Gus,Emily;Cunningham,ShaynaD;PreventionofLowerUrinaryTractSymptoms(PLUS)ResearchConsortium.
社区参与越来越被认为是研究的关键组成部分，但很少有研究提供如何成功地将社区观点纳入泌尿学研究的细节。本文描述了预防下尿路症状研究联盟（PLUS）设计RISE FOR HEALTH （RISE）所采用的社区参与策略，这是一项多中心、基于人群的前瞻性队列研究，旨在促进膀胱健康。方法和结果PLUS社区参与小组委员会在一套反种族主义社区参与原则和实践的指导下，组织、实施并传播了所有RISE社区参与活动的结果。社区参与是通过PLUS临床研究中心称为快速评估合作伙伴（RAPs）的社区合作伙伴的多样化网络进行的。通过在线调查(4)、虚拟讨论组（14）和一对一访谈（12），RAPs提供了RISE流程和材料的输入，包括亲自访问程序、标本收集说明、调查数据收集工具、招募材料、研究网站和研究名称。这一过程导致研究设计的这些方面发生了重大变化，并为社区合作伙伴带来了互惠利益。有意义的社区参与改进了RISE的设计和实施。PLUS将继续与社区合作伙伴一起解释RISE研究结果，传播RISE研究结果，并为其他PLUS研究提供信息，以开发促进膀胱健康的干预措施。未来的泌尿学研究也将受益于社区参与确定需要解决的优先研究问题。
IntroductionCommunity engagement is increasingly recognized as a critical component of research, but few studies provide details on how to successfully incorporate community perspectives in urological research. This manuscript describes the community engagement strategy used by the Prevention of Lower Urinary Tract Symptoms Research Consortium (PLUS) to design RISE FOR HEALTH (RISE), a multicenter, population‐based, prospective cohort study to promote bladder health.Methods and ResultsThe PLUS Community Engagement Subcommittee, guided by a set of antiracist community engagement principles and practices, organized, implemented, and communicated findings for all RISE community engagement activities. Community engagement was conducted through a diverse network of community partners at PLUS clinical research centers called Rapid Assessment Partners (RAPs). Via online surveys (4), virtual discussion groups (14), and one‐on‐one interviews (12), RAPs provided input on RISE processes and materials, including in‐person visit procedures, specimen collection instructions, survey data collection instruments, recruitment materials, the study website, and the study name. This process resulted in significant changes to these aspects of the study design with reciprocal benefits for the community partners.DiscussionMeaningful community engagement improved the design and implementation of RISE. PLUS will continue to engage community partners to interpret the RISE study results, disseminate RISE findings, and inform other PLUS studies toward the development of interventions to promote bladder health. Future urological studies would also benefit from community participation in determining priority research questions to address.