Improving understanding, promoting social inclusion, and fostering empowerment related to epilepsy: Epilepsy Foundation public awareness campaigns--2001 through 2013.
Improving understanding, promoting social inclusion, and fostering empowerment related to epilepsy: Epilepsy Foundation public awareness campaigns--2001 through 2013.
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DOI：
10.1016/j.yebeh.2014.12.044
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发表时间：
2015-03
期刊：
影响因子：
--
通讯作者：
Lowenberg K
中科院分区：
文献类型：
--
作者：
Price P;Kobau R;Buelow J;Austin J;Lowenberg K
癫痫是美国第四大最常见的神经疾病，公众和患者普遍对此知之甚少，这是一个重大的公共卫生问题。缺乏了解可能会放大癫痫患者面临的挑战，包括限制治疗机会、有效管理症状以及充分参与日常生活活动。公众和专业人员对癫痫的认识不足和适当的癫痫急救可能导致治疗不足、癫痫反应不当、身体约束、社会排斥或其他负面后果。为了满足提高公众对癫痫的教育和认识的需要，国家癫痫基金会在疾病控制和预防中心的支持下，每年开展多方面的公众教育和提高认识运动，旨在惠及广大人口和目标人群，包括青年、年轻人、种族/族裔群体(即非洲裔、西班牙裔和亚裔美国人)以及癫痫患者及其照顾者。竞选渠道包括传统媒体、社交媒体、社区意见领袖和名人代言人。本报告概述了2001年至2013年开展的这些运动的主要活动。
It is a significant public health concern that epilepsy, the fourth most common neurological disorder in the United States, is generally poorly understood by both the public and those living with the condition. Lack of understanding may magnify the challenges faced by those with epilepsy, including limiting treatment opportunities, effective management of symptoms, and full participation in daily life activities. Insufficient awareness of epilepsy and appropriate seizure first aid among the public and professionals can result in insufficient treatment, inappropriate seizure response, physical restraint, social exclusion, or other negative consequences. To address the need for increased public education and awareness about epilepsy, the national Epilepsy Foundation, supported by the Centers for Disease Control and Prevention, has conducted yearly multifaceted public education and awareness campaigns designed to reach the broad population and targeted segments of the population including youth, young adults, racial/ethnic groups (i.e., African-, Hispanic-, and Asian-Americans), and people with epilepsy and their caregivers. Campaign channels have included traditional media, social media, and community opinion leaders and celebrity spokespersons. The key activities of these campaigns, conducted from 2001 to 2013, are summarized in this report.