How can we get access to the experiences of people with dementia? Suggestions and reflections.
How can we get access to the experiences of people with dementia? Suggestions and reflections.
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DOI：
10.1080/11038120600723190
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发表时间：
2006-06-01
影响因子：
1.9
通讯作者：
Nygard, Louise
中科院分区：
文献类型：
--
作者：
Nygard, Louise
本文提出并讨论了一种方法学方法，旨在促进将痴呆症患者纳入研究，其目标是更好地了解他们的经历。痴呆症患者通常不被纳入研究对象，因为他们的认知缺陷被认为是一种障碍。此外，在定性研究传统中，大多数调查依赖于从访谈中获得的数据，因此需要沟通和语言技能，这些技能在痴呆症的早期原因中受到影响。因此，从那些受折磨的人的角度来看，痴呆症是如何经历和管理的，这一研究相当不足的领域长期以来一直被搁置一边。本文建议，定性观察和适应性访谈相结合可能使痴呆症患者作为研究线人参与研究。与痴呆症患者建立关系并帮助他们引出他们的经历有关的问题被详细阐述和讨论。关于如何将背景用于这一目的，以及如何将观察和访谈适应于患有痴呆症的举报人，提出了一些建议。
This paper suggests and discusses a methodological approach that aims to facilitate the inclusion of people with dementia in research where the ambition is to better understand their experiences. People with dementia have commonly not been included as informants in research as their cognitive deficits have been regarded as a hindrance. Moreover, in the qualitative research tradition, most inquiries rely on data obtained from interviews, thereby requiring communication and verbal skills, which are skills that are affected early in the cause of dementia. Consequently, the considerably under-researched area of how dementia is experienced and managed from the perspective of those afflicted has long been put aside. This paper suggests that a combination of qualitative observations and adapted interviews may make it possible for people with dementia to participate as research informants. Issues concerned with creating a relationship with informants with dementia and helping them to elicit their experiences are elaborated and discussed. Some suggestions are made concerning how the context can be used for this intent, and how the observations and interviews can be adapted to the informants with dementia.