"There are too many steps before you get to where you need to be": Help-seeking by patients with first-episode psychosis

"There are too many steps before you get to where you need to be": Help-seeking by patients with first-episode psychosis
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DOI:
10.3109/09638237.2012.705922
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发表时间:
2013-08-01
影响因子:
3.3
通讯作者:
Malla, Ashok K.
Malla, Ashok K.
中科院分区:
医学3区
文献类型:
--
作者:
Anderson, Kelly K.;Fuhrer, Rebecca;Malla, Ashok K.

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背景资料:有大量的研究路径照顾首次发病精神病(FEP);然而,很少有研究使用了定性研究范式或已完成的角度来看,经历psychotic episode.Objective:我们试图描述的经验,与FEP患者的路径照顾,并确定因素,帮助或阻碍寻求帮助的努力。方法:使用定性描述方法,我们进行了半结构化的采访,从早期干预计划招募16例患者。数据进行了分析,使用内容分析,组织成themes.Findings的调查结果:自我耻辱和普遍缺乏知识的精神病症状和服务的可用性是寻求帮助的障碍。与会者强调了重要他人在启动寻求帮助过程中的关键作用。与会者通常描述了一个复杂的一系列接触沿着的途径,以照顾,导致被误解和失去控制的感觉,但许多人确定意想不到的好处,他们的experience.Conclusions:我们的研究结果表明,在哲学和服务提供的方向转向创造服务,解决这些问题,并与年轻人谁利用它们。
Background: There has been substantial research on pathways to care in first-episode psychosis (FEP); however, few studies have used a qualitative research paradigm or have been done from the perspective of the person experiencing the psychotic episode.Objective: We sought to describe the experiences of patients with FEP on their pathway to care and to identify factors that help or hinder help-seeking efforts.Methods: Using a qualitative descriptive approach, we conducted semi-structured interviews with 16 patients recruited from an early intervention program. Data were analyzed using content analysis to organize the findings into themes.Findings: Self-stigma and a pervasive lack of knowledge regarding the symptoms of psychosis and availability of services were barriers to help-seeking. Participants highlighted the crucial role of significant others in initiating the help-seeking process. Participants typically described a complex series of contacts along the pathway to care which resulted in feelings of being misunderstood and losing control, but many individuals identified unexpected benefits of their experience.Conclusions: Our findings suggest a shift in the philosophy and orientation of service delivery towards the creation of services that address these concerns and are relevant to the young people who utilize them.