The development of the Indian vision function questionnaire: questionnaire content

The development of the Indian vision function questionnaire: questionnaire content
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DOI:
10.1136/bjo.2004.047217
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发表时间:
2005-04-01
影响因子:
4.1
通讯作者:
Fletcher, AE
Fletcher, AE
中科院分区:
医学2区
文献类型:
--
作者:
Murthy, GVS;Gupta, SK;Fletcher, AE

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目的:为了引出问题的陈述,描述视力障碍的后果,作为第一步,对发展的视力相关的生活质量的工具,在IndiaMethods:46个焦点小组进行了三个地区的印度。根据疾病类别,对男性和女性进行了单独的焦点小组:白内障(24),青光眼(6),糖尿病视网膜病变或黄斑变性(10)和“混合低视力”(6)。主持人遵循专题指南,会议进行录音和转录。问题陈述被提取和编码,并总结成主要的问题域areas.Results:近5000个问题陈述,平均每个参与者15个陈述,被合并成18个广泛的域areas。占所有陈述50%以上的最重要的问题领域是Amphibia,家庭或职业活动,视力症状和人的识别。另外四分之一的陈述与饮食困难、心理问题、自我照顾、阅读和看电视有关。问题的陈述是类似的疾病组,虽然排名varied.Conclusions:视力受损的参与者在印度所描述的功能和心理的影响是类似的,在其他人口环境中的报告,虽然背景和影响的问题有所不同。
Aim: To elicit problem statements describing the consequences of vision impairment as a first step towards the development of a vision related quality of life instrument for use in IndiaMethods: 46 focus groups were conducted in three regions of India. Separate focus groups were held for men and women and according to disease categories: cataract (24), glaucoma (six), diabetic retinopathy or macular degeneration (10), and "mixed low vision'' (six). Facilitators followed a topic guide and sessions were audio taped and transcribed. Problem statements were extracted and coded and summarised into major problem domain areas.Results: Nearly 5000 problem statements, an average of 15 statements per participant, were consolidated into 18 broad domain areas. The most important problem areas accounting for over 50% of all statements were ambulation, household or occupational activities, vision symptoms, and people recognition. A further quarter of statements related to difficulties with eating and drinking, psychological concerns, self care, reading, and watching television. Problem statements were similar across the disease groups, although rankings varied.Conclusions: The functional and psychological impacts described by visually impaired participants in India are similar to those reported in other population settings although the context and impact of problems vary.