Intrapersonal and Interpersonal Disengagement Coping: Associations with Emotions of Youth At-Risk for Huntington's Disease.
Intrapersonal and Interpersonal Disengagement Coping: Associations with Emotions of Youth At-Risk for Huntington's Disease.
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DOI：
10.3233/jhd-230566
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发表时间：
2023-06
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影响因子：
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通讯作者：
Kelly H. Watson;Abagail E. Ciriegio;Anna C. Pfalzer;A. Snow;Lisa M Hale;Spencer Diehl;Katherine E. McDonell
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文献类型：
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作者：
Kelly H. Watson;Abagail E. Ciriegio;Anna C. Pfalzer;A. Snow;Lisa M Hale;Spencer Diehl;Katherine E. McDonell
背景父母患有亨廷顿病（HD）的家庭面临着严重的压力源，这些压力源可能导致难以就疾病相关的问题进行沟通。家庭成员谁使用更多的脱离应对策略，包括否认和回避，以处理与疾病有关的压力源可能有最大的挑战，有效的沟通。目的本研究探讨了具有HD遗传风险的青少年和年轻人（AYA）的自我和人际脱离应对反应与观察和报告的情绪之间的关系。方法家系包括42名AYA（n = 26名女性），年龄10 - 34岁（M = 19岁，11个月; SD = 7岁，6个月），其父母患有HD（n = 22名女性，M = 46岁，10个月; SD = 9岁，2个月）。二人组参与了观察沟通和完成问卷调查脱离应对和内化症状。结果AYA的解脱应对与他们观察到的和报告的情绪困难（自我应对）无关。然而，有证据表明人际脱离应对的重要性，因为AYA的负面影响被观察到，并报告说，当AYA和他们的父母都报告说使用高水平的回避，否认和一厢情愿的想法来科普HD相关的压力时，AYA的负面影响最高。结论：研究结果强调了以家庭为导向的方法来应对和沟通的家庭受HD的重要性。
BACKGROUND Families in which a parent has Huntington's disease (HD) are faced with significant stressors that can contribute to difficulties in communicating together about illness-related concerns. Family members who use more disengagement coping strategies, including denial and avoidance, to deal with illness-related stressors may have the greatest challenges to effective communication. OBJECTIVE The current study examined the associations of intrapersonal and interpersonal disengagement coping responses with observed and reported emotions of adolescents and young adults (AYA) at genetic risk for HD. METHODS Families included 42 AYA (n = 26 females) ages 10 to 34 (M = 19 years, 11 months; SD = 7 years, 6 months) and their parent with HD (n = 22 females, M age = 46 years, 10 months; SD = 9 years, 2 months). Dyads participated in observations of communication and completed questionnaires about disengagement coping and internalizing symptoms. RESULTS Disengagement coping of AYA was unrelated to their observed and reported emotional difficulties (intrapersonal coping). However, there was evidence for the importance of interpersonal disengagement coping, as AYA's negative affect was observed and reported to be highest when both AYA and their parents reported using high levels of avoidance, denial, and wishful thinking to cope with HD-related stress. CONCLUSION The findings underscore the importance of a family-oriented approach to coping and communication in families affected by HD.