The impact of medical conditions on the support of children with profound intellectual and multiple disabilities
The impact of medical conditions on the support of children with profound intellectual and multiple disabilities
复制标题
医疗状况对严重智力障碍和多重残疾儿童的支持的影响
DOI：
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发表时间：
2005
期刊：
影响因子：
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通讯作者：
C. Vlaskamp
中科院分区：
文献类型：
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作者：
H. Zijlstra;C. Vlaskamp
背景-本研究的目的是分析严重智力残疾和多重残疾儿童的医疗条件对他们在特殊教育中心获得的专业支持的影响。方法回顾了荷兰3个特殊教育中心48名严重智力残疾和多重残疾儿童的病历、日常记录和家长与专业人员之间的日常沟通记录。此外，还与直接服务专业人员和医生进行了访谈，以完成数据收集。结果不仅是重大的医疗条件，如入院，而且轻微的医疗条件，如体温升高或嗜睡状态的孩子是在癫痫发作的结果，有影响执行活动和治疗的儿童教育中心。结论由于医疗条件的普遍性，专业人员可能会决定不进行计划的行动或不提供替代方案。尽管有高度专业化的专业支持，但仍有许多“空”时间的风险很高。
Background The aim of this study was to analyse the impact of medical conditions of children with profound intellectual and multiple disabilities on the professional support they receive in centres for special education. Method The medical files, the daily records and daily communication records between parents and professionals were reviewed for 48 children with profound intellectual and multiple disabilities in three centres for special education in the Netherlands. In addition, interviews were held with direct service professionals and medical doctors to complete the data collection. Results Not only do major medical conditions, such as hospital admissions, but also minor medical conditions, such as an increase in body temperature or the drowsy state a child is in as a result of a seizure, have an impact on performing activities and therapies in a child's educational centre. Conclusions As a result of the prevalence of the medical conditions, professionals may decide not to carry on actions that were planned or do not offer an alternative programme. The risk of many 'empty' hours despite the presence of highly specialized professional support is high.