Neuro-QOL and the NIH Toolbox: implications for epilepsy.
Neuro-QOL and the NIH Toolbox: implications for epilepsy.
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DOI：
10.2217/thy.10.55
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发表时间：
2010-09-01
期刊：
影响因子：
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通讯作者：
Cella, David
中科院分区：
文献类型：
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作者：
Nowinski, Cindy J;Victorson, David;Cella, David
神经系统疾病对患者生活的影响往往比常规检查中测量的要复杂得多。由于缺乏简单、心理测量可靠和普遍接受的工具，衡量这种影响可能具有挑战性。两个NIH资助的项目正在开发英语和西班牙语的评估工具，以解决这些问题，并应证明对癫痫和其他神经系统疾病的研究和治疗有用。第一个是Neuro-QOL，它创建了一套适用于常见神经系统疾病患者的健康相关生活质量指标。第二个是美国国立卫生研究院神经和行为功能评估项目，该项目正在收集可用于3至85岁所有年龄段的认知、情感、运动和感觉健康和功能的指标。本文介绍了这两个项目及其对癫痫治疗和研究的潜在价值。
The impact of neurological disorders on the lives of patients is often far more complex than what is measured in routine examination. Measurement of this impact can be challenging owing to a lack of brief, psychometrically sound and generally accepted instruments. Two NIH-funded initiatives are developing assessment tools, in English and Spanish, which address these issues, and should prove useful to the study and treatment of epilepsy and other neurological conditions. The first, Neuro-QOL, has created a set of health-related quality of life measures that are applicable for people with common neurological disorders. The second, the NIH Toolbox for the Assessment of Neurological and Behavioral Function, is assembling measures of cognitive, emotional, motor and sensory health and function that can be used across all ages, from 3 to 85 years. This article describes both the projects and their potential value to epilepsy treatment and research.