The journey to multiple sclerosis: a qualitative study.
The journey to multiple sclerosis: a qualitative study.
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多发性硬化症之旅：定性研究。
DOI：
10.1097/01376517-199902000-00003
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发表时间：
1999
期刊：
影响因子：
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通讯作者：
Ann Schweitzer
中科院分区：
文献类型：
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作者：
Wilma J. Koopman;Ann Schweitzer
多发性硬化症（MS）的诊断往往产生更多的问题比答案。这并不罕见听到个人谁收到诊断与救济和惊喜，但是，被诊断为慢性疾病，如MS的影响是复杂的。目前还没有已知的治愈这种疾病的缓解，复发和可能的持续进展。对于被诊断患有MS的人来说，应对一种原因不明且无法治愈的疾病的身体和心理压力是具有挑战性的。本研究的目的是探讨个人的经验，有症状的一段时间，然后被告知他们有MS的现象学定性研究方法被用来阐明他们的经验的性质。时间过程跨越诊断前、诊断时和诊断后。访谈进行了五个有目的地选择的参与者。数据分析过程突出了被调查者之间的共同线索和模式。出现了四个主要主题：耳语的开始，沉默的回声，所说的话，和再造的声音。最近被诊断为MS的个人的经验被照亮，以提供洞察力和信息，卫生保健提供者谁是面对告诉一个人MS的诊断。
The diagnosis of multiple sclerosis (MS) often creates more questions than answers. It is not uncommon to hear about individuals who receive the diagnosis with relief and surprise, However, the implications of being diagnosed with a chronic illness like MS is complex. There is no known cure for this disease that has remissions, relapses and possible continued progression. For individuals diagnosed with MS, responding to the physical and psychological stresses of a condition with an unknown cause and no cure is challenging. The purpose of this study was to explore the individual's experience of having symptoms for a period of time and then to be told they have MS. The phenomenological qualitative research method was used to illuminate the nature of their experiences. The time course spanned before diagnosis, at diagnosis and following diagnosis. Interviews were conducted with five purposefully selected participants. The process of data analysis highlighted common threads and patterns among informants. Four major themes emerged: Whispered Beginnings, Echoes of Silence, The Spoken Words, and Recreating Voice. The experiences of individuals recently diagnosed with MS are illuminated in order to provide insight and information to health care providers who are faced with telling a person the diagnosis of MS.