Help-seeking behaviour of patients with haematological malignancies treated with autologous stem cell transplantation
Help-seeking behaviour of patients with haematological malignancies treated with autologous stem cell transplantation
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DOI：
10.1111/ecc.12454
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发表时间：
2017-09-01
影响因子：
2.1
通讯作者：
Dekker, J.
中科院分区：
文献类型：
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作者：
Braamse, A. M. J.;van Meijel, B.;Dekker, J.
接受自体干细胞移植的恶性血液病患者面临着危及生命的疾病和紧张的治疗。虽然许多患者报告问题，但相对较少的患者报告治疗后需要额外的专业护理。我们的目的是通过探索患者的需求和寻求帮助的行为与他们所经历的症状和问题，深入了解这种差异背后的因素。采用扎根理论方法进行定性研究设计。20例患者，在过去的2年中接受自体干细胞移植，参加了一个单独的半结构化访谈。影响病人求助行为的因素来自我们的数据，并按以下类别排序：（1）从症状到问题的转变;（2）倾向于自己处理问题和寻求亲属的帮助;（3）问题类别和应对策略;（4）寻求（不寻求）专业帮助的动机。我们的结论是，仅仅出现症状并不会导致寻求帮助的行为：这种关系是由患者的个人目标，未来的观点和恢复阶段修改。病人似乎更喜欢在没有专业护理的情况下处理问题。病人对专业护理的实际需求取决于他们的应对策略、社会网络和对现有护理的了解。
Patients with haematological malignancies undergoing autologous stem cell transplantation face a life-threatening illness and stressful treatment. Although many patients report problems, relatively few patients report a need for additional professional care after treatment. We aimed to gain insight into the factors underlying this discrepancy by exploring patients' needs and help-seeking behaviour in relation to their experienced symptoms and problems. A qualitative research design following the grounded theory approach was used. Twenty patients, treated with autologous stem cell transplantation in the past 2 years, participated in an individual semi-structured interview. Factors contributing to patients' help-seeking behaviour were derived from our data and ordered in the following categories: (1) transition from symptoms to problems; (2) preference for dealing with problems themselves and with help from relatives; (3) problem categories and coping strategies; and (4) motives for (not) bringing in professional help. We concluded that the mere presence of a symptom does not lead to help-seeking behaviour: this relationship is modified by patients' personal goals, future perspective and phase of recovery. Patients seem to prefer to deal with problems without professional care. Patients' actual appeal for professional care depends on their coping strategies, social network and knowledge of available care.