Activity and meaning making in the everyday lives of people with advanced cancer.
Activity and meaning making in the everyday lives of people with advanced cancer.
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DOI：
10.1017/s1478951509990472
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发表时间：
2009-12-01
影响因子：
2.2
通讯作者：
Josephsson, Staffan
中科院分区：
文献类型：
--
作者：
la Cour, Karen;Johannessen, Helle;Josephsson, Staffan
目的：本研究旨在探索和理解晚期癌症患者如何通过活动创造意义和处理日常生活。方法：从一项更大的研究中招募了7名参与者的目的样本。数据是通过定性访谈和参与者观察收集的，在参与者的家庭环境中，当他们从事他们赋予特定价值的活动时。运用叙事理论和相关文献进行解释分析。结果：该研究显示了晚期癌症患者的时尚叙事对处理晚期癌症患者的日常生活有何帮助。“以一种好的方式说再见”的元叙事为参与者提供了一个总体结构，因为他们试图在个人的社会文化生活和死亡临近的背景下创造期望的叙事。“虽病但健康”的叙述为探索同时感觉良好和重病之间的对比提供了一个舞台。进一步采用“常规和连续性”的活动被认为是提供一个安全、熟悉的框架来刺激参与者的日常能动性的一种手段。“我的小麦加”被认为是一种反映生活确认经历和抽出时间的活动的叙事。结果的意义：在日常生活中进行和讲述的确定叙事可以指导姑息治疗服务的发展，以支持晚期癌症患者在他们的生命中创造意义。
OBJECTIVE: This study aims to explore and understand how people with advanced cancer create meaning and handle everyday life through activity.METHODS: A purposive sample of seven participants was recruited from a larger study. Data were collected through qualitative interviews and participant observations conducted in the participants' home environments while they were engaged in activities to which they assigned particular value. Interpretive analysis was conducted using narrative theory and relevant literature.RESULTS: The study shows how people in conditions of advanced cancer fashion narratives useful for handling everyday life with advanced cancer. A meta-narrative of "saying goodbye in a good way" provided an overall structure for the participants as they attempted to create desired narratives negotiated in context of the individuals' sociocultural life and in the proximity of death. A narrative of "being healthy although ill" provided an arena for exploring the contrast between simultaneously feeling well and severely ill. Further emplotment of activities in "routines and continuity" was identified as a means to provide a safe, familiar framework stimulating participants' everyday agency. "My little Mecca" was identified as a narrative reflecting the activity of life-confirming experiences and taking time out.SIGNIFICANCE OF RESULTS: The identified narratives performed and told in daily life may guide the development of palliative care services to support people with advanced cancer in creating meaning in the remains of their lives.