Extended Family Caregivers for Persons Living With Dementia.
Extended Family Caregivers for Persons Living With Dementia.
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DOI：
10.1177/10748407221115455
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发表时间：
2022-11
影响因子：
3.1
通讯作者：
Savla, Jyoti
中科院分区：
文献类型：
--
作者：
Roberto, Karen A.;Savla, Jyoti
尽管当代家庭的结构发生了变化，但人们对大家庭成员--兄弟姐妹、孙子、侄女/侄子、继父母--是痴呆症患者亲属的主要照顾者知之甚少。需要关于这些照顾者的信息，以帮助确保医疗保健和社会服务环境中的提供者了解他们的需求。这项研究的重点是大家庭照顾者的护理情况以及护理对他们的健康和福祉的影响。在研究1中，来自全国护理研究的数据被用来描述107名大家庭照顾者的经历。在研究2中，案例研究技术引出了关于10名大家庭照顾者经历的额外信息。总的来说，这些照顾者提供的护理很少或根本没有正式的支持，偶尔还会从一个小型的非正式网络中获得帮助。照顾会影响他们的身体和心理健康，这取决于照顾者和痴呆症患者之间关系的强度以及所提供的护理类型。这些发现有助于对大家庭照顾者的新认识，并突出了大家庭痴呆症照顾者所发挥的重要作用和他们面临的挑战。
Despite changes in the structure of contemporary families, little is known about extended family members—siblings, grandchildren, nieces/nephews, stepkin—who are primary caregivers for a relative living with dementia. Information about these caregivers is needed to help ensure their needs are understood by providers in health care and social service settings. The focus of this research was on the care situations of extended family caregivers and the impact of caregiving on their health and well-being. In Study 1, data from the National Study of Caregiving were used to describe the experiences of 107 extended family caregivers. In Study 2, case study techniques elicited additional information about the experiences of 10 extended family caregivers. Collectively, these caregivers provide care with little or no formal support and occasional help from a small informal network. Caregiving affected their physical and emotional health, depending on the strength of the relationship between the caregiver and the person living with dementia and the type of care provided. Findings contribute new knowledge about extended family caregivers and highlight the important role extended family dementia caregivers play and the challenges they face.
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影响因子：
2.2
作者：
Dellmann-Jenkins, M;Blankemeyer, M;Pinkard, O
通讯作者：
Pinkard, O
影响因子：
1.8
作者：
Gerstel, Naomi
通讯作者：
Gerstel, Naomi
影响因子：
3
作者：
Celdran, Montserrat;Triado, Carme;Villar, Feliciano
通讯作者：
Villar, Feliciano
DOI：
10.1093/geronb/gbx150
发表时间：
2018-09-01
影响因子：
6.2
作者：
Lin, I-Fen;Brown, Susan L.;Cupka, Cassandra Jean
通讯作者：
Cupka, Cassandra Jean
影响因子：
1.7
作者：
Fruhauf, Christine A.;Jarrott, Shannon E.;Allen, Katherine R.
通讯作者：
Allen, Katherine R.