Assessment of psychosocial outcomes in genetic counseling research: an overview of available measurement scales.
Assessment of psychosocial outcomes in genetic counseling research: an overview of available measurement scales.
复制标题
DOI：
10.1007/s10897-007-9111-6
复制
发表时间：
2007-12-01
影响因子：
1.9
通讯作者：
Meiser, Bettina
中科院分区：
文献类型：
--
作者：
Kasparian, Nadine A;Wakefield, Claire E;Meiser, Bettina
本文的目的是描述和评估目前遗传咨询结果研究中使用的许多测量量表。由三名研究人员组成的团队审查了现有文献，并选择了各种适合测量遗传咨询结果的经过验证的仪器。有多种量表可以评估咨询者的以下每一项结果：对遗传咨询的满意度；知识;决策;心理调整；应对；感知到的个人控制力；对疾病风险的看法；以及关于遗传风险的家庭沟通。然而，每种工具固有的优点和局限性需要在实施之前仔细考虑。在遗传咨询背景下，量表选择应考虑研究样本的特征（例如识字水平、文化、医疗状况）、研究环境的实用性（例如可用的资金和资源、时间限制、研究人员的专业知识）、研究的目的（即要研究的遗传咨询经历的具体方面）以及量表背后的科学（例如理论框架、心理测量特性）。
The aim of the present paper was to describe and evaluate many of the measurement scales currently used in genetic counseling outcomes research. A team of three researchers reviewed the available literature and selected a variety of validated instruments suitable for measurement of genetic counseling outcomes. There are numerous scales to assess each of the following outcomes among counselees: satisfaction with genetic counseling; knowledge; decision-making; psychological adjustment; coping; perceived personal control; perceptions of disease risk; and family communication about genetic risk. However, the strengths and limitations inherent to each instrument warrant careful consideration prior to implementation. In the genetic counseling context, scale selection should be undertaken with thought directed towards the characteristics of the research sample (e.g. levels of literacy, culture, medical condition), the practicalities of the research setting (e.g. available funding and resources, time restrictions, researcher expertise), the purpose of the research (i.e. the specific aspect of the genetic counseling experience to be studied), and the science underlying the scale (e.g. theoretical framework, psychometric properties).