Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.
Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.
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DOI：
10.1161/circulationaha.115.019506
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发表时间：
2016-04-05
期刊：
影响因子：
37.8
通讯作者：
Kaltman JR
中科院分区：
文献类型：
--
作者：
Pasquali SK;Jacobs JP;Farber GK;Bertoch D;Blume ED;Burns KM;Campbell R;Chang AC;Chung WK;Riehle-Colarusso T;Curtis LH;Forrest CB;Gaynor WJ;Gaies MG;Go AS;Henchey P;Martin GR;Pearson G;Pemberton VL;Schwartz SM;Vincent R;Kaltman JR
美国国家心肺血液研究所于 2015 年 1 月召开了一个工作组，探讨与先天性心脏病 (CHD) 研究的综合数据网络相关的问题。总体目标是就如何管理、整合和分析从众多来源捕获的快速增加的数据量以改善护理和结果制定共同愿景。本报告总结了 CHD 数据的当前状况、其他领域使用的数据集成方法、CHD 数据集成模型的关键考虑因素以及工作组提出的短期和长期愿景和建议。
The National Heart, Lung, and Blood Institute convened a Working Group in January 2015 to explore issues related to an integrated data network for congenital heart disease (CHD) research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of CHD data, data integration methodologies used across other fields, key considerations for data integration models in CHD, and the short- and long-term vision and recommendations made by the Working Group.