Fighting spirit expressed by women with breast cancer in professional-and peer-led online support groups: effects on outcomes.
Fighting spirit expressed by women with breast cancer in professional-and peer-led online support groups: effects on outcomes.
复制标题
DOI：
10.18689/mjcsr-1000102
复制
发表时间：
2017-01-01
期刊：
影响因子：
--
通讯作者：
Lepore, Stephen
中科院分区：
文献类型：
--
作者：
Lieberman, Morton A;Lepore, Stephen
目的：斗志是否能减轻乳腺癌患者的抑郁情绪？方法：不同于以往的问卷调查研究，我们通过分析斗志在乳腺癌支持群体中的相互作用来评估斗志。三个在线小组被研究：同步职业领导小组(生命超越癌症)，异步职业领导小组(知音伙伴)和异步同行领导公告栏小组(同行公告栏)。样本主要是高加索人，已婚，受过高等教育，并患有早期癌症。我们使用了一个名为DTSearch的内容分析程序来衡量这些群体中表达的战斗词汇。采用线性回归分析打斗词语与随访性抑郁的关系，控制基线抑郁和总字数。我们还比较了样本表达的战斗词汇的数量。结果：我们发现，将他们的癌症视为一场战斗或战斗会导致抑郁程度降低的情况在所有样本中都是不确定的。与专业领导组相比，同龄人组有两倍的打架词。结论：以前的研究和目前的研究都强烈支持无效假设。我们的发现基于对战斗精神的行为测量，确实增加了之前的研究结果。不幸的是，对于癌症患者来说，普遍的外行观点是，没有战斗精神就意味着心理上的无能。它传达的信息是“勇敢和善良的人战胜了癌症，而懦弱和不配的人却让癌症杀死了他们”。这种观点会给已经面临疑难病症的女性带来内疚、自责和压力。
OBJECTIVE: Does fighting spirit reduce depression in women with breast cancer (BC)?METHODS: Unlike previous studies using questionnaires, we assessed fighting spirit by analyzing interaction in BC support groups. Three online groups were studied: synchronous professionally led groups (Life Beyond Cancer), asynchronous professionallyled groups (Bosom Buddies) and asynchronous peer-led bulletin board groups (Peer Bulletin Boards). The samples were predominantly Caucasian, married, highly educated, and had early stage cancer. We used a content analysis program, DTSearch, to measure fighting words expressed in the groups. Linear regression was used to examine the relation between fighting words and follow-up depression, controlling for baseline depression and total word count. We also compared samples on the number of fight words expressed.RESULTS: We found that viewing their cancer as a fight or battle would result in lowered depression was disconfirmed in all samples. The peer groups had twice as many fight words compared to professionally led groups.CONCLUSION: Previous studies as well as the current one strongly support the null hypothesis. Our finding based on a behavioral measure of fighting spirit does add to previous studies results. Unfortunately the common lay perspective for cancer sufferers is that not having fighting spirit would mean a psychological incapacity. The message is that "brave and good people defeat cancer and that cowardly and undeserving people allow it to kill them". This view can create guilt, self flagellation and stress in woman already facing a difficult disease.