Informed Consent: The Politics of Intent and Practice in Medical Research Ethics
Informed Consent: The Politics of Intent and Practice in Medical Research Ethics
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DOI：
10.1146/annurev-anthro-102313-030413
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发表时间：
2014-01-01
期刊：
影响因子：
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通讯作者：
Hogle, Linda F.
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文献类型：
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作者：
Hoeyer, Klaus;Hogle, Linda F.
知情同意是医学研究风险管理的一个重要特征。这篇评论概述了同意要求的历史，并通过对同意实践的人类学研究的回顾描述了其不同的形式。我们区分意图政治和实践政治，以表明同意要求是如何通过坚持特定的道德认可的意图而在实践中根深蒂固的，而不管这些意图是否实现。我们提请注意社会经济背景，物质实践和伦理政治动态的重要性，这些因素支撑了知情同意的弹性。我们的结论是，知情同意之所以变得如此普遍，是因为它有能力召唤出一个稳定的形象，一个具有特定道德吸引力的可识别和可管理的程序，同时作为一个空的能指：一个人们可以投射非常不同的希望，关注和期望的形象。
Informed consent is a key feature of risk management in medical research. This review outlines the history of the consent requirement and describes its diverse forms through a review of anthropological studies of consent practices. We make a distinction between the politics of intent and the politics of practice to show how the consent requirement has become entrenched in practices through insistence on particular morally sanctioned intentions regardless of whether these intentions are ever realized. We draw attention to the importance of socioeconomic contexts, material practices, and the ethicopolitical dynamics that undergird the resilience of informed consent. We conclude that informed consent has become so ubiquitous thanks to an ability to conjure a stable image of a recognizable and manageable procedure with a particular moral appeal, while simultaneously serving as an empty signifier: an image onto which people can project very different hopes, concerns, and expectations.