Personal care assistants' experiences of caring for people on home mechanical ventilation
Personal care assistants' experiences of caring for people on home mechanical ventilation
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DOI：
10.1111/scs.12326
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发表时间：
2017-03-01
影响因子：
1.9
通讯作者：
Lindahl, Berit
中科院分区：
文献类型：
--
作者：
Israelsson-Skogsberg, Asa;Lindahl, Berit
目的：本研究的目的是描述个人护理助理（PCA）在家中与呼吸机辅助人员一起工作的经验。方法：收集15份支持儿童或成人使用家用机械通气（HMV）的pca的录音半结构化访谈资料。13名女性和2名男性参与其中；他们与HMV使用者的工作经验从1年到17年不等（中位数为6年）。数据以归纳和解释的方式进行定性内容分析。调查结果：从数据中得出了五个类别：成为复杂工作环境的一部分；承担多方面的责任；在某人家中进行的照顾；在界限模糊的环境中创造界限；以及亲近他人的身体和灵魂。结论：参与者在身体上和情感上都感觉和他们一起工作的人非常亲近。他们有很大的责任，因此需要相应的支持、指导和围绕HMV用户运转良好的组织。国际上一致认为，先进的家庭护理将继续扩大，个人护理援助是这一发展的关键。我们建议pca与HMV用户合作的一种方法是创建由协调个人需求的关键人物领导的多专业团队。在这一领域需要从广泛的角度进行更多的研究，包括hmv辅助人员，亲属，个人护理助理和管理组织。
Aim: The aim of this study was to describe personal care assistants' (PCA) experiences of working with a ventilator-assisted person at home.Methods: Data were collected from fifteen audiotaped semistructured interviews with PCAs supporting a child or adult using home mechanical ventilation (HMV). Thirteen women and two men participated; their working experience with HMV users ranged from one to 17 years (median 6 years). Data were subjected to qualitative content analysis in an inductive and interpretive manner.Findings: Five categories emerged from the data: Being part of a complex work situation; Taking on a multidimensional responsibility; Caring carried out in someone's home; Creating boundaries in an environment with indistinct limits; and Being close to another's body and soul.Conclusions: The participants felt very close to the person they worked with, both physically and emotionally. They had a great responsibility and therefore a commensurate need for support, guidance and a well-functioning organisation around the HMV user. There is international consensus that advanced home care will continue to expand and personal care assistance is key in this development. We suggest that one way to move forward for PCAs working with HMV users is to create multiprofessional teams led by a key-person who coordinates the individual needs. More research is needed within this area from a broad perspective including the HMV-assisted persons, relatives, personal care assistants and management organisations.