Commentary on "My Story: A Genetic Counselor's Journey from Provider to Patient".
Commentary on "My Story: A Genetic Counselor's Journey from Provider to Patient".
复制标题
对“我的故事：遗传咨询师从提供者到患者的旅程”的评论。
DOI：
10.1007/s10897-008-9170-3
复制
发表时间：
2008
影响因子：
1.9
通讯作者：
Biesecker,BarbaraBowles
中科院分区：
文献类型：
--
作者：
Biesecker,BarbaraBowles
The anonymous author of,“My Story: A Genetic Counselor’s Journey from Provider to Patient,” deserves our deepest respect and admiration (Anonymous 2008). The author has endured a tortuous decision and its consequences, and has found the courage to publish her journey. This commentary addresses themes that arise from her story, draws upon the research literature and highlights what genetic counselors and other health care providers can learn from her experiences.Overall, the author helps genetic counselors understand more intimately what it might be like for patients making decisions about whether or not to end a pregnancy. She facilitates an opportunity for empathic understanding of our patients’ experiences. Most importantly, the author demonstrates the need for a most essential counseling skill: our capacity for compassion towards others (Kessler 1999). As a genetic counselor, her journey is also a painful reminder that as providers we are not exempt from the suffering experienced by our patients. The author is able to help us recognize strategies that may better help our patients who are living with the consequences of difficult decisions. The literature is replete with commentaries and studies published by professionals as patients recounting their experiences when the “shoe was on the other foot.”(Beatty 2004; Guttmacher 2000; Klitzman 2006; McKevitt and Morgan 1997). From these reports we can gain insight into our professional work and its consequences because of the patient’s unique ability to describe her/his experience from two vantage points. Guttmacher, a medical geneticist, offers twenty lessons to fellow physicians following his experi-
