Co-constructing experiential knowledge in health: The contribution of people living with Parkinson to the co-design approach
Co-constructing experiential knowledge in health: The contribution of people living with Parkinson to the co-design approach
复制标题
共同构建健康体验知识：帕金森病患者对共同设计方法的贡献
DOI：
10.7146/qhc.v1i1.124110
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发表时间：
2022
期刊：
影响因子：
--
通讯作者：
L. Bonneville
中科院分区：
文献类型：
--
作者：
A. Sendra;Sylvie Grosjean;L. Bonneville
背景资料：在数字医疗技术的设计中使用协作方法可以帮助研究人员更好地了解患者的观点。本文从2019年加拿大的一项专注于共同设计和帕金森病的案例研究开始，讨论了使用叙事访谈来捕捉患者体验的潜力。目的：本研究的目的是通过叙事访谈中的互动来考察“经验知识”的共建过程，并强调这种方法对协同设计方法的意义。研究方法：对2019年与PD患者及其护理人员进行的19次叙事访谈的成绩单进行了定性分析。结果如下：物化嵌入式，体现和新兴的知识，研究结果揭示了叙事访谈的潜力，以提供洞察力的人生活与PD的经验知识是如何构成的。讨论内容：除了生成一个学习环境，分析表明，叙事访谈有助于使可见的经验知识，通过患者，护理人员和研究人员之间的互动过程。结论：这表明，叙事访谈允许以患者为中心的数字健康技术设计，因为它们收集了影响这些人体验的心理，社会和医疗因素。
Background: The use of collaborative approaches in the design of digital health technologies could help researchers to better understand the patient perspective. Starting from a 2019 Canadian case study focused on co-design and Parkinson’s disease, this paper discusses the potential of using narrative interviews to capture the patient experience. Aim: The objectives of this study are to examine the process of co-construction of ‘experiential knowledge’ through the interaction during a narrative interview and stress the significance of this method in relation to a co-design approach. Methods: A qualitative analysis of transcripts from 19 narrative interviews conducted in 2019 with people living with PD and their caregivers was performed. Results: Materialized in embedded, embodied, and emergent knowledge, findings reveal the potential of narrative interviews to provide insight to how experiential knowledge of people living with PD is constituted. Discussion: In addition to generate a learning environment, the analysis indicates that narrative interviews help to make visible experiential knowledge through the interaction processes between patients, caregivers, and researchers. Conclusion: This suggests that narrative interviews permit a more patient-centered design of digital health technologies, as they collect the psychological, social, and medical factors that influence the experience of these individuals.
影响因子：
4.5
作者：
Schnall R;Rojas M;Bakken S;Brown W;Carballo-Dieguez A;Carry M;Gelaude D;Mosley JP;Travers J
通讯作者：
Travers J