Stress, Burden, and Well-Being in Dementia and Nondementia Caregivers: Insights From the Caregiving Transitions Study
Stress, Burden, and Well-Being in Dementia and Nondementia Caregivers: Insights From the Caregiving Transitions Study
复制标题
DOI：
10.1093/geront/gnaa108
复制
发表时间：
2021-08-01
期刊：
影响因子：
5.7
通讯作者：
Roth, David L.
中科院分区：
文献类型：
--
作者：
Sheehan, Orla C.;Haley, William E.;Roth, David L.
背景和目标：很少有基于人群的研究直接将痴呆症患者的照顾者与其他残疾人的照顾者（非痴呆症照顾者）进行比较。我们招募了提供大量持续护理的痴呆症和非痴呆症护理人员，并比较了这些组的护理人员压力源测量、负担评估和幸福感。 研究设计和方法：从基于人群的卒中地理和种族差异原因 (REGARDS) 研究中招募了提供至少 1 年且每周至少 5 小时持续护理的护理人员 (N = 251)。护理人员报告了痴呆症患者的护理状况、压力源、负担和幸福感。结果：47% (n = 117) 报告了对痴呆症患者的护理情况。与非痴呆症护理人员相比，痴呆症护理人员报告了更多的压力源，对自我护理和行为问题提供了更多的护理。痴呆症护理人员还报告了对压力和负担的更高评价，以及更多的抑郁症状，但在精神和身体健康生活质量方面与非痴呆症护理人员没有差异。在多变量调整模型中，对照顾者问题总数的调整减弱了痴呆症和非痴呆症照顾者之间在负担和抑郁措施方面的差异。讨论和启示：在这个基于人群的样本中，痴呆症和非痴呆症照顾者在总体幸福感指标上表现出相对较小的差异，这可能是因为本研究中两组照顾者都提供了大量的照顾。痴呆症护理人员可能需要特殊帮助来解决痴呆症特有的问题，例如行为问题。需要针对负担沉重的护理人员进行临床干预和政策改变，以支持他们让护理对象在家中养老。
Background and Objectives: Few population-based studies have directly compared caregivers of persons with dementia to caregivers of persons with other disabilities (nondementia caregivers). We enrolled dementia and nondementia caregivers who were providing substantial and sustained care and compared these groups on measures of caregiver stressors, appraisals of burden, and well-being.Research Design and Methods: Caregivers (N = 251) who provided continuous care for at least 1 year and at least 5 h per week were recruited from the population-based REasons for Geographic And Racial Differences in Stroke (REGARDS) study. Caregivers reported on dementia caregiving status, stressors, burden, and well-being.Results: Forty-seven percent (n = 117) reported caring for a person with dementia. Dementia caregivers reported more stressors, providing more care for self-care and behavioral problems than nondementia caregivers. Dementia caregivers also reported higher appraisals of stress and burden, and more depressive symptoms, but did not differ from nondementia caregivers on mental and physical health quality of life. In multivariable-adjusted models, adjustment for the total number of care recipient problems attenuated differences between dementia and nondementia caregivers on burden and depression measures.Discussion and Implications: Dementia and nondementia caregivers showed relatively few differences in indicators of overall well-being in this population-based sample, perhaps because both groups of caregivers in this study were providing substantial care. Dementia caregivers may require special assistance with dementia-specific problems such as behavioral problems. Clinical interventions and policy changes targeting highly burdened caregivers are needed to support them in allowing their care recipients to age in place at home.