Touch, Caring, and Cancer: randomized controlled trial of a multimedia caregiver education program

Touch, Caring, and Cancer: randomized controlled trial of a multimedia caregiver education program
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DOI:
10.1007/s00520-012-1682-6
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发表时间:
2013-05-01
影响因子:
3.1
通讯作者:
Soltysik, Robert
Soltysik, Robert
中科院分区:
医学2区
文献类型:
--
作者:
Collinge, William;Kahn, Janet;Soltysik, Robert

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本研究采用随机对照试验方法,通过制作78分钟的多语种DVD和66页的家庭指导手册,对家庭照顾者进行简单的触摸式指导,以提高家庭照顾者对癌症患者的舒适度。内容涉及对癌症触摸的态度和沟通,给予和接受触摸的心理准备,安全预防措施,舒适和放松的按摩技术,针对特定癌症相关症状的穴位按摩,以及在家庭环境中的实践。材料有英文、西班牙文和中文版本。一个以社区为基础的多种族样本的97名成年患者/照顾者二人组被随机分配到实验(按摩)或注意力控制(阅读)组4周。按摩二人组接受了每周至少练习三次的计划和指导,而对照组的护理人员则以相同的频率为他们的病人朗读。自我报告工具评估了症状严重程度、生活质量、感知压力和照顾者态度的变化。两种活动后患者的所有症状均显著减轻:阅读后减轻12- 28%,按摩后减轻29- 44%。按摩护理人员使用触摸和按摩作为护理形式,在信心、舒适度和自我效能方面表现出显着的提高。触摸和按摩方法的多媒体教学可以为家庭成员提供一种可行的方法,增强护理中的自我效能和满意度,同时减少患者的疼痛、抑郁和其他症状。家庭成员可以学习和应用安全简单的方法,增加病人的舒适度,减少痛苦。
A randomized controlled trial was conducted to evaluate outcomes of a multimedia instructional program for family caregivers in simple touch-based techniques to provide comfort to cancer patients at home.A multilingual 78-min DVD and 66-page manual were produced for homebased instruction. Content addresses attitudes and communication about touch in cancer, psychological preparation for giving and receiving touch, safety precautions, massage techniques for comfort and relaxation, acupressure for specific cancer-related symptoms, and practice in the home setting. Materials were produced in English, Spanish, and Chinese versions. A community-based multiethnic sample of 97 adult patient/caregiver dyads was randomized to experimental (massage) or attention control (reading) groups for 4 weeks. Massage dyads received the program and instructions to practice at least three times per week, while control caregivers read to their patients for the same frequency. Self-report instruments assessed change in symptom severity, quality of life, perceived stress, and caregiver attitudes.Significant reductions in all symptoms occurred for patients after both activities: 12-28 % reductions after reading vs. 29-44 % after massage. Massage caregivers showed significant gains in confidence, comfort, and self-efficacy using touch and massage as forms of caregiving.Multimedia instruction in touch and massage methods may offer family members a viable means of enhancing self-efficacy and satisfaction in caregiving while decreasing patient pain, depression, and other symptoms. Family members may be able to learn and apply safe and simple methods that increase patient comfort and reduce distress.