Beyond survival: Quality of life and follow-up after childhood cancer

Beyond survival: Quality of life and follow-up after childhood cancer
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DOI:
10.1093/jpepsy/jsm052
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发表时间:
2007-10-01
影响因子:
3.6
通讯作者:
Eiser, Christine
Eiser, Christine
中科院分区:
心理学3区
文献类型:
--
作者:
Eiser, Christine

文献摘要

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目的探讨晚期生理和心理影响对儿童癌症存活者生活质量的影响,(B)提供随访护理的理由,以及(C)对存活者的潜在价值。方法总结了以下4个方面的研究:(A)存活者经历的晚期生理和心理影响及其对健康相关生活质量的可能影响;(B)生活质量评估;(C)提供随访的理由;(D)评估其对生存的价值。结果随访评估可包括对第二癌症的识别和治疗,但这些在临床上很少被发现。因此,评估需要强调对幸存者的价值,可以包括改善的生活质量、疾病信息、筛查次数和生活方式行为,特别是吸烟。结论需要多学科的随访模式来解决儿童癌症后发现的影响范围。对生活质量的系统评估应是后续行动的一个组成部分,以便促进沟通并扩大协商的范围。
Objectives To discuss (a) the impact of late physical and psychological effects on quality of life (QOL) among survivors of childhood cancer, (b) the rationale for providing follow-up care, and (c) potential value for survivors.Methods Research related to four areas was summarized: (a) the late physical and psychological effects experienced by survivors and possible impact on health-related QOL, (b) assessment of QOL, (c) rationale for offering follow-up, and (d) assessment of its value to survivors.Results Evaluation of follow-up can include identification and treatment of second cancers, but these are rarely identified in clinic. Evaluation, therefore, needs to emphasize value for survivors and can include improved QOL, disease information, screening attendance, and lifestyle behaviors especially smoking.Conclusions Multi-disciplinary models of follow-up are required to address the range of effects identified after childhood cancer. Systematic assessment of QOL should be an integral part of follow-up in order to facilitate communication and broaden the scope of the consultation.