Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism
Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism
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DOI：
10.1186/1477-7525-4-1
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发表时间：
2006-01-04
影响因子：
3.6
通讯作者：
Smedje, Hans
中科院分区：
文献类型：
--
作者：
Allik, Hiie;Larsson, Jan-Olov;Smedje, Hans
背景：儿童广泛性发育障碍（PDD）的估计患病率为6/1.000。众所周知，养育智力受损和患有PDD的儿童与父母自身的健康受损有关。然而，仍然有很少的可用数据的健康相关的生活质量（HRQL）的儿童的父母与Alfreger综合征（AS）和高功能自闭症（HFA），或其他PDD诊断的儿童正常的智力。本研究旨在评估AS/HFA学龄儿童父母的HRQL方面及其与儿童行为特征的相关性。方法：样本包括32名AS/HFA儿童的31名母亲和30名父亲以及32名年龄和性别匹配的典型发育儿童的30名母亲和29名父亲。父母的HRQL是通过使用12项简表健康调查（SF-12）来测量身体和精神健康。结果：AS/HFA患儿母亲SF-12评分低于对照组，说明母亲的身体健康状况较差。与父亲相比，AS/HFA儿童的母亲也有较低的SF-12身体评分。在AS/HFA组，孕产妇健康与行为问题，如多动症和行为问题的child.Conclusion：母亲，但不是父亲的儿童AS/HFA报告受损的HRQL，有产妇的福祉和儿童的行为特征之间的关系。
Background: The estimated prevalence rate of Pervasive Developmental Disorders (PDD) in children is 6 per 1.000. Parenting children who are intellectually impaired and have PDDs is known to be linked to the impaired well-being of the parents themselves. However, there is still little available data on health-related quality of life (HRQL) in parents of children with Asperger Syndrome ( AS) and High-Functioning Autism (HFA), or other PDD diagnoses in children of normal intelligence. The present study aimed to evaluate aspects of HRQL in parents of school-age children with AS/HFA and the correlates with child behaviour characteristics.Methods: The sample consisted of 31 mothers and 30 fathers of 32 children with AS/HFA and 30 mothers and 29 fathers of 32 age and gender matched children with typical development. Parental HRQL was surveyed by the use of the 12 Item Short Form Health Survey (SF-12) which measures physical and mental well-being. The child behaviour characteristics were assessed using the structured questionnaires: The High-Functioning Autism Spectrum Screening Questionnaire (ASSQ) and The Strengths and Difficulties Questionnaire (SDQ).Results: The mothers of children with AS/HFA had lower SF-12 scores than the controls, indicating poorer physical health. The mothers of children with AS/HFA also had lower physical SF-12 scores compared to the fathers. In the AS/HFA group, maternal health was related to behaviour problems such as hyperactivity and conduct problems in the child.Conclusion: Mothers but not fathers of children with AS/HFA reported impaired HRQL, and there was a relationship between maternal well-being and child behaviour characteristics.