Interconnections Between My Research and Experience as a Caregiver: Impacts on Empirical and Personal Perspectives.
Interconnections Between My Research and Experience as a Caregiver: Impacts on Empirical and Personal Perspectives.
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我的研究与作为护理人员的经验之间的相互联系：对经验和个人观点的影响。
DOI：
10.1093/geront/gnw113
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发表时间：
2017
期刊：
影响因子：
--
通讯作者：
Fredman,Lisa
中科院分区：
文献类型：
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作者：
Fredman,Lisa
在我获得第一笔R 01基金研究生育对健康的影响后不久，我和姐姐就成了父亲的照顾者。在接下来的13年里，我们帮助他进行日常生活活动（ADL），陪他去看医生，安排家庭医疗保健，最后是家庭临终关怀。起初，我能够将我们的援助与ADL联系起来，协调他的护理时的挫折感，以及我们的心理压力与我的流行病学研究联系起来。我对护理和长期护理语言的熟悉帮助我们在医疗和家庭护理系统中导航，并成为我父亲的倡导者。然而，随着我父亲的健康状况下降，我感到我的研究和我的经验之间越来越脱节：与医生和其他护理人员沟通，应对危机以及与我姐姐关于将我们的父亲放在养老院的谈话比我父亲的痴呆症更大的压力来源。这些差异让我意识到，我可以通过帮助照顾者应对这些挑战来帮助他们，而不是通过进行定量研究。所以我参加了一个心理咨询项目。我的手稿将记录的方式，bepaly手机投注改变了我;我的专业工作是如何做的，没有帮助我作为一个照顾者;如何发展和家庭理论，我在我的心理学课程学习已经扩大了我的成年儿童照顾者所面临的压力源的理解，以及如何将整个经验与生殖和第三章的职业生涯，建立在中年经验。
Shortly after I received my first R01 grant to study the health effects of caregiving, my sister and I became caregivers to our father. For the next 13 years, we helped him with activities of daily living (ADLs), accompanied him to doctors’ appointments, arranged for home health care, and finally for home hospice. At first, I was able to connect our assistance with ADLs, frustration with coordinating his care, and our psychological stress with my epidemiologic studies. My familiarity with the language of caregiving and long-term care helped us to navigate the medical and home care systems, and to be advocates for my father. However, as my father’s health declined, I felt an increasing disconnect between my research and my experience: communicating with physicians and other care providers, responding to crises and conversations with my sister about placing our father in a nursing home were greater sources of stress than my father’s dementia. These discrepancies made me realize that I could help caregivers more by helping them to negotiate these challenges than through performing quantitative research. So I enrolled in a counseling psychology program. My manuscript will chronicle the ways that caregiving changed me; how my professional work did and did not help me as a caregiver; how the developmental and family theories that I am learning in my psychology classes have expanded my understanding of stressors facing adult child caregivers, and how this entire experience ties into generativity and Third Chapter careers that build on midlife experiences.