In motion, out of place: the public space(s) of Tourette Syndrome
In motion, out of place: the public space(s) of Tourette Syndrome
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DOI：
10.1016/j.socscimed.2003.10.008
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发表时间：
2004-07-01
影响因子：
5.4
通讯作者：
Dowler, L
中科院分区：
文献类型：
--
作者：
Davis, KK;Davis, JS;Dowler, L
根据多丽丝·汉弗莱（Doris Humphrey）的说法，“没有什么比动作和姿势更清楚或不可避免地揭示人的内心[原文如此]……当你移动的那一刻，无论好坏，你都暴露了自己的本质”（《舞蹈笔记本》，1984）。抽动秽语综合征的特点是运动和发声抽搐，正是由于这个原因而引起了耻辱：它引起的抽动和运动表明抽动秽语症是一种超出“正常”的东西。本文探讨了抽动秽语症患者在公共场所被感知和接受的方式，利用已发表的疾病叙述和电影纪录片来解决抽动秽语症引起的反应为何如此严重的问题。我们将展示围绕抽动秽语症的耻辱是如何源于人们对抽动秽语症破坏公共场所秩序和健康的看法。为了描述耻辱的产生和对 TS 个体的暴力反应，我们借鉴了女权主义研究中的身体和表演性理论、凯瑟琳·沃尔德比的想象解剖学工作以及空间社会建构的地理学观点。空间地理研究通过展示与疾病相关的身体运动如何通过违反管理特定公共空间的不成文守则而产生耻辱，从而阐明人们生活经历的讨论。我们本文的目的不是引入新的经验数据，而是分析社会空间功能与个人疾病经历之间复杂关系所产生的耻辱形成机制。 (C) 2003 Elsevier Ltd. 保留所有权利。
According to Doris Humphrey, "Nothing so clearly or inevitably reveals the inner man [sic] than movement and gesture... the moment you move you stand revealed, for good or ill, for what you are" (The dance notebook, 1984). Tourette Syndrome, characterized by motor and vocal tics, elicits stigma for just this reason: the tics and movements it causes have revealed Touretters as something beyond the 'normal.' This paper examines the ways Touretters are perceived and received in public spaces, using published illness narratives and film documentaries to address the question of why the reactions TS invokes are so severe. We will demonstrate how the stigma surrounding the disorder stems from the perception of Touretters as disruptive to the order and health of public spaces. To describe the production of stigma and the violent reactions to TS individuals, we draw upon theories of bodies and performativity from feminist studies, Catherine Waldby's work with the imaginary anatomy, and geographical perspectives on the social construction of space. The geographic studies of space are used to illuminate discussions of people's life experiences by showing how body movements associated with illness produce stigma by transgressing the unwritten codes that govern particular public spaces. Our intention in this paper is not to introduce new empirical data, but rather to analyze the mechanisms of stigma formation produced by the complex relationships between the functioning of social spaces and individuals' experiences of illness. (C) 2003 Elsevier Ltd. All rights reserved.