Living Well With Kidney Disease and Effective Symptom Management: Consensus Conference Proceedings.
Living Well With Kidney Disease and Effective Symptom Management: Consensus Conference Proceedings.
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DOI：
10.1016/j.ekir.2022.06.015
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发表时间：
2022-09
影响因子：
6
通讯作者：
Kalantar-Zadeh, Kamyar
中科院分区：
文献类型：
--
作者：
Rhee, Connie M.;Edwards, Dawn;Ahdoot, Rebecca S.;Burton, James O.;Conway, Paul T.;Fishbane, Steven;Gallego, Daniel;Gallieni, Maurizio;Gedney, Nieltje;Hayashida, Glen;Ingelfinger, Julie;Kataoka-Yahiro, Merle;Knight, Richard;Kopple, Joel D.;Kumarsawami, Latha;Lockwood, Mark B.;Murea, Mariana;Page, Victoria;Sanchez, J. Emilio;Szepietowski, Jacek C.;Lui, Siu-Fai;Kalantar-Zadeh, Kamyar
关键词：
慢性肾脏病（CKD）带来了尿毒症症状的高负担，这些症状可能被低估，诊断不足和治疗不足。令人不快的症状，如CKD相关瘙痒和情绪/心理困扰，通常发生在症状群中，治疗1个症状可能会缓解该症状群中的其他症状。肾脏病与有效症状管理共识会议召集了全球肾脏倡导组织和肾脏网络的健康专家和领导人，讨论与CKD相关的不愉快症状对受影响者健康和福祉的影响，并考虑最佳症状管理策略。优化症状管理是保守和预防性管理的基石，旨在预防或延迟透析开始。在需要透析的肾功能不全（KDRD）患者中，逐步过渡到透析和家庭透析方式提供了个性化方法。考虑到“衰竭”作为肾脏描述符的负面含义以及CKD旅程中的成功故事，建议将KDRD作为首选术语。让CKD患者参与确定并优先考虑他们的个人价值观和个人需求必须是确保他们积极参与CKD管理（包括KDRD）的核心。需要以人为本的沟通和护理，以确保多样性，公平性和包容性;考虑CKD患者健康素养的教育/意识;以及CKD患者，护理伙伴和提供者之间的共同决策。通过将CKD患者的需求（包括有效的症状管理）置于其治疗的中心，CKD可以以符合其目标的方式进行最佳治疗。
Chronic kidney disease (CKD) confers a high burden of uremic symptoms that may be underrecognized, underdiagnosed, and undertreated. Unpleasant symptoms, such as CKD-associated pruritus and emotional/psychological distress, often occur within symptom clusters, and treating 1 symptom may potentially alleviate other symptoms in that cluster. The Living Well with Kidney Disease and Effective Symptom Management Consensus Conference convened health experts and leaders of kidney advocacy groups and kidney networks worldwide to discuss the effects of unpleasant symptoms related to CKD on the health and well-being of those affected, and to consider strategies for optimal symptom management. Optimizing symptom management is a cornerstone of conservative and preservative management which aim to prevent or delay dialysis initiation. In persons with kidney dysfunction requiring dialysis (KDRD), incremental transition to dialysis and home dialysis modalities offer personalized approaches. KDRD is proposed as the preferred term given the negative connotations of “failure” as a kidney descriptor, and the success stories in CKD journeys. Engaging persons with CKD to identify and prioritize their personal values and individual needs must be central to ensure their active participation in CKD management, including KDRD. Person-centered communication and care are required to ensure diversity, equity, and inclusion; education/awareness that considers the health literacy of persons with CKD; and shared decision-making among the person with CKD, care partners, and providers. By putting the needs of people with CKD, including effective symptom management, at the center of their treatment, CKD can be optimally treated in a way that aligns with their goals.
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影响因子：
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作者：
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DOI：
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