Implementing a telehealth-delivered psychoeducational support group for care partners of individuals with primary progressive aphasia.
Implementing a telehealth-delivered psychoeducational support group for care partners of individuals with primary progressive aphasia.
复制标题
为原发性进行性失语症患者的护理伙伴建立远程医疗提供的心理教育支持小组。
DOI：
10.1080/02687038.2022.2076281
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发表时间：
2023
期刊：
影响因子：
2
通讯作者：
Henry,MayaL
中科院分区：
文献类型：
--
作者：
Schaffer,KristinM;Henry,MayaL
原发性进行性失语症（PPA）是一种语言突出的痴呆症，它不仅从根本上影响了患者的生活，而且也影响了他们的家庭成员。护理伙伴在承担护理作用的同时，也容易受到自身健康和心理社会负面后果的影响。支持小组是满足护理伙伴需求的一种方式，为具有共同经历的个人提供社交、获取疾病知识和学习应对策略的机会。鉴于PPA在美国很少见，面对面的支持小组也很少，因此需要替代的会议模式，以克服潜在参与者相对稀缺、缺乏经过适当培训的临床专业人员以及负担过重的护理提供者所面临的后勤需求所带来的限制。基于远程保健的支助小组为护理伙伴提供了与其他护理伙伴进行虚拟联系的机会；然而，关于其可行性和效益的研究是有限的。目的：本初步研究调查了为PPA患者的护理伙伴建立基于远程医疗的支持小组是否可行，并在心理社会功能方面产生益处。方法与程序PPA患者的10名护理伙伴（7名女性，3名男性）参加了包括相关主题心理教育在内的小组干预，随后进行了小组讨论。会议通过电话会议每月举行两次，为期四个月。所有参与者都完成了干预前和干预后的测量，以检查支持团体满意度和心理社会功能，包括生活质量、应对、情绪和护理感知。结果与结果在研究阶段一致的小组成员参与支持了该干预模型的可行性。配对样本排列测试的定量结果表明，在心理测量学验证的社会心理测量上，从干预前到干预后没有显著的变化。从质量上讲，内部李克特式调查的结果表明，在生活质量、社会支持、护理技能和心理教育方面取得了积极的成果。与此相关，从书面调查回应的主题分析中得出的干预后主题包括：加强对PPA的了解，感觉联系和相互支持，以及希望有更多的时间在一起。结论与现有文献评估痴呆和其他获得性医疗条件下虚拟交付护理伙伴支持小组的结果一致，本研究的结果支持了PPA患者护理伙伴远程医疗支持小组的可行性和益处。
BackgroundPrimary progressive aphasia (PPA) is a language-prominent dementia that fundamentally impacts the lives of not only the person with the diagnosis, but also their family members. While assuming a caregiving role, care partners are vulnerable to negative health and psychosocial consequences of their own. Support groups are one way to meet the needs of care partners, providing opportunities for individuals with common experiences to socialize, obtain knowledge about disorders, and learn coping strategies. Given that PPA is rare and that in-person support groups are sparse in the United States, there is a need for alternative meeting modalities, to overcome the limitations imposed by relative scarcity of potential participants, lack of appropriately-trained clinical professionals, and the logistical demands faced by overburdened care providers. Telehealth-based support groups provide care partners with opportunities to connect virtually with other care partners; however, research regarding their feasibility and benefit is limited.AimsThis pilot study investigated whether a telehealth-based support group for care partners of persons with PPA is feasible and yields benefits in psychosocial functioning.Methods & ProceduresTen care partners of persons with PPA (7 females; 3 males) participated in a group intervention comprising psychoeducation about relevant topics, followed by group discussion. Meetings were held twice monthly for four months via teleconference. All participants completed pre- and post-intervention measures to examine support group satisfaction as well as psychosocial functioning, including quality of life, coping, mood, and caregiving perception.Outcomes & ResultsConsistent group member participation across study phases supports the feasibility of this intervention model. Quantitative results from paired-samples permutation tests indicate no significant changes from pre- to post-intervention on psychometrically-validated psychosocial measures. Qualitatively, results from an in-house Likert-type survey indicate positive outcomes in quality of life, social support, caregiving skills, and psychoeducation. Relatedly, post-intervention themes derived from a thematic analysis of written survey responses included:Enhancing knowledge about PPA, feeling connected and mutually supported, anddesire for more time together.ConclusionsConsistent with existing literature evaluating virtually-delivered care partner support groups in dementia and other acquired medical conditions, findings from this study support the feasibility and benefit of telehealth-based support groups for care partners of persons with PPA.