Mother and Daughter Perspectives on Genetic Counseling and Testing of Adolescents for Hereditary Breast Cancer Risk.
Mother and Daughter Perspectives on Genetic Counseling and Testing of Adolescents for Hereditary Breast Cancer Risk.
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母亲和女儿对青少年遗传性乳腺癌风险遗传咨询和检测的看法。
DOI：
10.1016/j.jpeds.2022.06.027
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发表时间：
2022
期刊：
影响因子：
--
通讯作者：
Terry,Mary
中科院分区：
文献类型：
--
作者：
Jennings,Catherine;Wynn,Julia;Miguel,Cecilia;Levinson,Elana;Florido,MichelleE;White,Melissa;Sands,ColleenBurke;Schwartz,LisaA;Daly,Mary;O'Toole,Karen;Buys,SaundraS;Glendon,Gordon;Hanna,Danielle;Andrulis,IreneL;Terry,Mary
ObjectiveTo evaluate the risks, benefits, and utility of testing for adult-onset hereditary breast and ovarian cancer (HBOC) in adolescents and young adults.Study designWe evaluated interest in genetic testing of adolescents for adult-onset HBOC genes through semistructured interviews with mothers and adolescents who had previously participated in breast cancer research or had pursued (mothers) clinical testing for HBOC.ResultsThe majority of mothers (73%) and daughters (75%) were interested in the daughter having genetic testing and were motivated by the future medical utility and current social utility of relieving anxiety and allowing them to prepare. Mothers and daughters both reported that approximately 3 years in the future was the best time to test the daughter regardless of the current age of the daughter. Overall, both mothers and daughters expressed the importance of the involvement of the mother to provide educational and emotional support but ultimately it was the daughter's decision to test. Balancing the independence and maturity of the daughter while reinforcing communication and support within the dyad was a prominent theme throughout the interviews.ConclusionsThere is interest among some high-risk adolescents and young adults to engage in genetic counseling and undergo testing. Providing pretest and posttest genetic counseling, assessing preferences for parent involvement, and offering psychosocial support may be important if genetic testing for HBOC is offered to adolescents and young adults before age 25 years.
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影响因子：
45.3
作者：
Bradbury, Angela R.;Patrick-Miller, Linda;Daugherty, Christopher K.
通讯作者：
Daugherty, Christopher K.
影响因子：
5.2
作者：
MacLeod, Rhona;Beach, Anna;Kerzin-Storrar, Lauren
通讯作者：
Kerzin-Storrar, Lauren
让年轻人为未来关于受遗传性乳腺癌影响或有遗传性乳腺癌风险的家庭的癌症风险做出决策做好准备：一项定性访谈研究。
影响因子：
2.8
作者：
E. Rowland;G. Plumridge;Anna Considine;A. Metcalfe
通讯作者：
A. Metcalfe
影响因子：
1.9
作者：
Berliner, Janice L.;Fay, Angela Musial;Tillmanns, Todd
通讯作者：
Tillmanns, Todd
症状表征和影响是社区居住的成人样本人群中寻求护理的决定因素。
DOI：
10.1037//0278-6133.12.3.171
发表时间：
1993
期刊：
Health psychology : official journal of the Division of Health Psychology, American Psychological Association
影响因子：
--
作者：
Cameron,L;Leventhal,EA;Leventhal,H
通讯作者：
Leventhal,H