The role of a patient navigator in fertility preservation.
The role of a patient navigator in fertility preservation.
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患者导航员在生育力保存中的作用。
DOI：
10.1007/978-1-4419-6518-9_37
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发表时间：
2010
影响因子：
--
通讯作者：
Scott-Trainer,Jill
中科院分区：
文献类型：
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作者：
Scott-Trainer,Jill
作为西北大学生育保育科的患者导航员，我主要关心的是患者的整体情绪健康。我与300多名最近被诊断为癌症或自身免疫性疾病的患者进行了交谈。发现自己患有危及生命的疾病是可怕的，病人告诉我他们第一次被诊断出患有过山车时的情绪起伏不定。许多患者甚至不会考虑他们的治疗可能会如何影响他们的生育能力。同样，这也不一定是他们的外科医生或肿瘤学家想到的第一个想法。当首要任务是挽救病人的生命时，这并不令人惊讶。当面临一种成本未知的危及生命的疾病时，试图对自己的生育能力做出决定可能不是一些患者的优先事项。然而，保留生育能力对许多患者来说很重要，无论预后或收入如何，都应该始终讨论这一问题。
As the patient navigator for the Department of Fertility Preservation at Northwestern University, my main concern is the overall emotional well-being of the patient. I have spoken with over 300 patients who have had a recent cancer or autoimmune disease diagnosis. Finding out that you have a life-threatening illness is horrifying, and patients have told me of the emotional rollercoaster that they experience when they are first diagnosed. Many patients will not even think how their treatments may affect their fertility. Likewise, it is not necessarily the first thought on their surgeon’s or oncologist’s mind either. This is not surprising when the first priority is to save the patient’s life. When facing a life-threatening illness with unknown costs, trying to make a decision about their fertility may not be a priority for some patients. However, preserving fertility is important for many patients and should always be discussed regardless of prognosis or income.