Ethical community-engaged research: a literature review.

Ethical community-engaged research: a literature review.
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DOI:
10.2105/ajph.2013.301605
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发表时间:
2013-12
影响因子:
12.7
通讯作者:
Khodyakov D
Khodyakov D
中科院分区:
医学2区
文献类型:
--
作者:
Mikesell L;Bromley E;Khodyakov D

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健康研究依赖于贝尔蒙特报告等道德原则来保护研究参与者的权利和福祉。然而,基于社区的参与性研究(CBPR)还必须考虑社区的权利和福祉。这需要额外的伦理考虑,这些考虑已经在 CBPR 文献中进行了广泛讨论,但尚未综合。我们进行了全面的专题文献综述,并总结了基于经验的 CBPR 伦理讨论,重点关注 CBPR 中贝尔蒙特原则的价值、伦理 CBPR 的其他重要组成部分、CBPR 从业者面临的伦理挑战以及确保 CBPR 符合伦理标准的策略。我们的研究为制定道德 CBPR 的工作定义和概念模型奠定了基础。
Health research has relied on ethical principles, such as those of the Belmont Report, to protect the rights and well-being of research participants. Community-based participatory research (CBPR), however, must also consider the rights and wellbeing of communities. This requires additional ethical considerations that have been extensively discussed but not synthesized in the CBPR literature. We conducted a comprehensive thematic literature review and summarized empirically grounded discussions of ethics in CBPR, with a focus on the value of the Belmont principles in CBPR, additional essential components of ethical CBPR, the ethical challenges CBPR practitioners face, and strategies to ensure that CBPR meets ethical standards. Our study provides a foundation for developing a working definition and a conceptual model of ethical CBPR.